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Momelotinib (OMJJARA) now on PBS

The MPN AA is delighted to advise that the Australian government has now approved the inclusion of momelotinib, now known as OMJJARA, onto the Pharmaceutical Benefits Scheme (PBS). Momelotinib was originally developed in Melbourne.  A short news item about its approval is HERE. What is momelotinib…
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International review series on MPNs published

The April 2025 edition of Haematologica features an excellent review series on MPNs. The authors of the introduction paper to the series, Australia's Drs Steven Lane and Yin Yuan, explain that 'the review series is not designed to be a definitive review of all aspects of MPN biology and treatment.…
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PV treatment ‘rusfertide’ trial results

Early results from the Phase 3 clinical trial of the hepciden mimetic 'rusfertide' have recently been published. Rusfertide aims to overcome the need for phlebotomy in patients with polycythemia vera (PV), by keeping haematocrit below .45. Early phase 3 trial results show that rusfertide was well…
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Pegasys shortage update: where to from here

The Therapeutic Goods Administration has updated its advice on a possible shortage of Pegasys in Australia. Its website now states that there is an anticipated shortage from June to September 2025. To date, prompt action by the supplier of Pegasys in Australia, Echo Therapeutics in partnership with…
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Diet, exercise and myelofibrosis: a holistic approach

The Medscape organisation in the US produces podcasts about Myelofibrosis. If you'd like to listen to the podcasts or even just read the transcripts, it's simple to log in via Google, Apple or to set up a log in and password. The most recent podcast (March 2025) discussing diet and exercise is…
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ASH 2024 overview podcast from Claire Harrison from the UK

Haematologist Claire Harrison from Guys and St Thomas' Hospital in the UK is one of the world's leading MPN experts. In this podcast she provides an overview of some of the MPN presentations from the American Society of Hematology meeting (ASH) in December 2024. Yet again, the amount of research…
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Welcome to the MPN Alliance Australia website.

MPN stands for Myeloproliferative Neoplasms which are a group of rare chronic blood cancers.

The MPN Alliance Australia, (MPN AA) is run by MPN patients for MPN patients and their families. We all give of our time voluntarily.

MPN patient quality of life is central to everything we do. We aim for these pages to assist patients and families to find support and relevant up to date information related to myeloproliferative neoplasms. This site acts as a portal to comprehensive evidence-based disease information.

We also provide external links to disease-specific articles and other information from Australian and international researchers and clinicians, and MPN organisations.

We welcome your feedback as we aim to support you as best we can. Please send us a message if you would like to share ideas with us to improve our site.

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