The Leukaemia Foundation puts out a regular MPN Newsletter for MPN patients and their families and carers. It is a very informative read and can be accessed HERE. And don’t forget the upcoming MPN support group in Brisbane on 14 March run by the Leukaemia Foundation.
Author Archive for: Jenny
This author has yet to write their bio.Meanwhile lets just say that we are proud Jenny contributed a whooping 18 entries.
Entries by Jenny
Peter Mac has kindly made available to patients the videos from the MPN Patient Education Seminar held on 18 February 2020. This event included the following sessions: MPNs, what are they? Dr Kate Burbury Fatigue Management […]
Drs Mesa and Scherber, haematologists from the Mays Cancer Centre in the US, discuss the latest findings from the American Society of Hematology meeting in December 2019, as well as the latest updates regarding new treatments for MPNs. They also discuss quality of life issues for MPN patients. WATCH VIDEO
A summary of the latest information on MPNs from the ASH 2019 (American Society of Haematology) meeting is available, courtesy of MPN Advocacy & Education International. ASH 2019 summary videos on MPNs
An exciting new change has occurred to the way Australians can register to become blood stem cell donors. A simple cheek swab is now all you need to do to register through the Australian Bone Marrow Donor Registry’s ‘Strength to Give’ campaign. For a small number of MPN patients, the only possibility of prolonging survival […]
What is Light The Night? Light the Night is the Leukaemia Foundation’s beautiful evening lantern walk, where Australians come together and transform the darkness into a sea of glowing light to give hope to all those impacted by blood cancer. It’s your night to walk beside those facing their own blood cancer journey, and to remember […]
The Leukaemia Foundation supports MPN Awareness Day (September 12).
Novartis is proposing to the Australian Pharmaceutical Benefits Advisory Committee that Jakavi (ruxolitinib) be made available on the PBS for patients with polycythemia vera (PV). Currently Jakavi is on the PBS for patients with myelofibrosis in certain circumstances. The use of Jakavi by Novartis is proposed for PV patients in certain circumstances – that is, […]
An update on the progress with these newly developed drugs is provided by Associate Professor David Ross, Consultant Haematologist at Royal Adelaide Hospital and Flinders Medical Centre, Adelaide ———————————————————————————— Treatment options for polycythaemia vera (PV) are limited at present. Hydroxyurea, a mild chemotherapy tablet, is the most widely used drug treatment in Australia, although the use […]
The MPN Alliance Australia works in partnership with the Leukaemia Foundation, who manage the dedicated MPN Fund and provide governance.