Entries by Jenny

Phase III study of Momelotinib launched to evaluate efficacy in myelofibrosis patients

Myelofibrosis patients may be interested to know that the pharmaceutical company Sierra Oncology has announced the global launch of the new phase III MOMENTUM clinical trial. This trial is evaluating the efficacy of momelotinib, a JAK1, JAK2 and ACVR1 inhibitor, versus active comparator danazol in patients with symptomatic and anaemic myelofibrosis. There are Australian sites […]

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Study invitation – investigating the impact of the COVID-19 pandemic

Researchers at Queen’s University Belfast and the University of Aberdeen, invite you to take part in an online research study investigating the impact of the COVID-19 (coronavirus) pandemic on caregivers and patients with cancer, pre-cancerous conditions and rare diseases. This survey is open to all patients and caregivers aged 18 years or older. To participate in […]

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Invitation to participate in Living with MPN Fatigue study

Australian MPN patients are invited to take part in a research project called Living with MPN Fatigue. This project aims to improve the understanding of the human experience of MPN fatigue (being tired). You are eligible to take part if you have an MPN or CML diagnosis, live in Australia and have experienced fatigue affecting […]

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COVID-19 and cancer in Victoria – models of care

MPN expert (and telehealth expert) Associate Professor Kate Burbury from the Peter MacCallum Cancer Centre and MPNAA’s Nathalie Cook  join the Cancer Council Victoria’s Danielle Spence and Katherine Lane, as well as primary care expert Professor Jon Emery from the University of Melbourne, to explore how telehealth and other models of care can balance health […]

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COVID-19 information for MPN patients

The MPN AA has set up a COVID-19 resources page for MPN patients.  It includes information from Australian and international MPN experts as well as information about keeping well with your MPN. It can be accessed HERE.  

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Leukaemia Foundation’s February 2020 MPN News now available

The Leukaemia Foundation puts out a regular MPN Newsletter for MPN patients and their families and carers. It is a very informative read and can be accessed HERE. And don’t forget the upcoming MPN support group in Brisbane on 14 March run by the Leukaemia Foundation.

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