Author Archive for: Jenny
This author has yet to write their bio.Meanwhile lets just say that we are proud Jenny contributed a whooping 15 entries.
Entries by Jenny
A summary of the latest information on MPNs from the ASH 2019 (American Society of Haematology) meeting is available, courtesy of MPN Advocacy & Education International. ASH 2019 summary videos on MPNs
An exciting new change has occurred to the way Australians can register to become blood stem cell donors. A simple cheek swab is now all you need to do to register through the Australian Bone Marrow Donor Registry’s ‘Strength to Give’ campaign. For a small number of MPN patients, the only possibility of prolonging survival […]
What is Light The Night? Light the Night is the Leukaemia Foundation’s beautiful evening lantern walk, where Australians come together and transform the darkness into a sea of glowing light to give hope to all those impacted by blood cancer. It’s your night to walk beside those facing their own blood cancer journey, and to remember […]
The Leukaemia Foundation supports MPN Awareness Day (September 12).
Novartis is proposing to the Australian Pharmaceutical Benefits Advisory Committee that Jakavi (ruxolitinib) be made available on the PBS for patients with polycythemia vera (PV). Currently Jakavi is on the PBS for patients with myelofibrosis in certain circumstances. The use of Jakavi by Novartis is proposed for PV patients in certain circumstances – that is, […]
An update on the progress with these newly developed drugs is provided by Associate Professor David Ross, Consultant Haematologist at Royal Adelaide Hospital and Flinders Medical Centre, Adelaide ———————————————————————————— Treatment options for polycythaemia vera (PV) are limited at present. Hydroxyurea, a mild chemotherapy tablet, is the most widely used drug treatment in Australia, although the use […]
We have a delightfully supportive and friendly group of MPN patients in the Canberra region so if you live in or around Canberra, please come and join us. There is always a great deal of news to share, experiences to recount, even sometimes blood test results to discuss! We are meeting in a lovely warm […]
MPN AA is supporting MPN research at Melbourne’s Peter MacCallum Cancer Centre and Walter & Eliza Hall Institute of Medical Research, investigating a new way to treat iron deficiency symptoms and improve quality of life for people living with polycythaemia vera (PV). 100% of all tax deductable donations to MPN AA from now until the […]
You can now watch the video presentations from the 11th Joyce Niblack Memorial Conference on Myeloproliferative Neoplasms , 2-3 March 2019, Scottsdale, Arizona. The powerpoints of the presentations are also available to read online. This biennial patient conference is organised by the MPN Education Foundation in the USA, and features presentations by many of the […]
The MPN Alliance Australia works in partnership with the Leukaemia Foundation, who manage the dedicated MPN Fund and provide governance.