Myelofibrosis patients may be interested to know that the pharmaceutical company Sierra Oncology has announced the global launch of the new phase III MOMENTUM clinical trial. This trial is evaluating the efficacy of momelotinib, a JAK1, JAK2 and ACVR1 inhibitor, versus active comparator danazol in patients with symptomatic and anaemic myelofibrosis. There are Australian sites […]
Author Archive for: Jenny
This author has yet to write their bio.Meanwhile lets just say that we are proud Jenny contributed a whooping 23 entries.
Entries by Jenny
Researchers at Queen’s University Belfast and the University of Aberdeen, invite you to take part in an online research study investigating the impact of the COVID-19 (coronavirus) pandemic on caregivers and patients with cancer, pre-cancerous conditions and rare diseases. This survey is open to all patients and caregivers aged 18 years or older. To participate in […]
Australian MPN patients are invited to take part in a research project called Living with MPN Fatigue. This project aims to improve the understanding of the human experience of MPN fatigue (being tired). You are eligible to take part if you have an MPN or CML diagnosis, live in Australia and have experienced fatigue affecting […]
MPN expert (and telehealth expert) Associate Professor Kate Burbury from the Peter MacCallum Cancer Centre and MPNAA’s Nathalie Cook join the Cancer Council Victoria’s Danielle Spence and Katherine Lane, as well as primary care expert Professor Jon Emery from the University of Melbourne, to explore how telehealth and other models of care can balance health […]
The MPN AA has set up a COVID-19 resources page for MPN patients. It includes information from Australian and international MPN experts as well as information about keeping well with your MPN. It can be accessed HERE.
The Leukaemia Foundation puts out a regular MPN Newsletter for MPN patients and their families and carers. It is a very informative read and can be accessed HERE. And don’t forget the upcoming MPN support group in Brisbane on 14 March run by the Leukaemia Foundation.
Peter Mac has kindly made available to patients the videos from the MPN Patient Education Seminar held on 18 February 2020. This event included the following sessions: MPNs, what are they? Dr Kate Burbury Fatigue Management […]
Drs Mesa and Scherber, haematologists from the Mays Cancer Centre in the US, discuss the latest findings from the American Society of Hematology meeting in December 2019, as well as the latest updates regarding new treatments for MPNs. They also discuss quality of life issues for MPN patients. WATCH VIDEO
A summary of the latest information on MPNs from the ASH 2019 (American Society of Haematology) meeting is available, courtesy of MPN Advocacy & Education International. ASH 2019 summary videos on MPNs