Webinar – Creating meaning in the face of blood cancer – now available

The Leukaemia Foundation have added another webinar to their suite of general webinars which focus on living well.

The latest webinar is now available and is about creating meaning in the face of blood cancer.
It is available HERE.

And don’t forget the wonderful webinar from Dr Ranjana Srivastava. Dr Srivastava is an oncologist with a wealth of experience.
She has fantastic tips for coping with a cancer diagnosis, ageing and living with blood cancer and we highly recommend it.
The webinar featuring Dr Srivastava is available  HERE.


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Webinar on ‘Fear of cancer recurrence’ now available

The Leukaemia Foundation runs webinars for blood cancer patients. The latest is titled ‘Fear of cancer recurrence’, and also deals with the fear of progression, which is more relevant in the case of MPN patients.

It is presented by clinical psychologist Dr Charlotte Tottman and is very informative.
It is now available to watch HERE.

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Leukaemia Foundation’s ‘Eating Well’ booklet

The MPN AA is pleased to share news of the publication of the latest booklet on healthy eating from the Leukaemia Foundation.

‘Eating Well – a guide for patients and their support people’, was updated in collaboration with Nathalie Cook OAM, Accredited Practising Dietitian.

Nathalie has a special interest in applying her knowledge and skills of medical nutrition therapy to help people living with blood cancer and understand the link between nutrition, disease management and wellness.

The booklet contains the latest evidence based information on healthy eating and we commend it to you.

For more information about what you can do to stay well living with an MPN, we also recommend our Living Well pages.


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COVID-19 information for MPN patients

The MPN AA has set up a COVID-19 resources page for MPN patients.  It includes information from Australian and international MPN experts as well as information about keeping well with your MPN.

It can be accessed HERE.


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MPN Patient Information Afternoon – Sydney – 23 February 2019

MPN AA and the Leukaemia Foundation collaborated to stage this very successful MPN patient information event at Royal North Shore Hospital in Sydney, attended by 60 patients and family members.
MPN AA is very grateful on behalf of MPN patients for the great job done by Greg Zotos from the Leukaemia Foundation, and also Madeline Thompson on the day.
The presentations were great – firstly Dr Renee Eslick spoke very informatively about “Diagnosis of MPN”. Sue McConaghy, psychologist, spoke on the topic “This is Not the Life I Ordered”, providing ideas about tools we could use to help manage unwelcome and unplanned events in our lives – relevant to all of us at times! We then broke for a lovely afternoon tea, and reconvened to hear Dr Carmel Sullivan speak about how yoga could enhance our physical and mental health and quality of life. Dr Cecily Forsyth followed, and spoke on the topic “Optimal Management of MPN in Australia”, about the latest research on how MPN patients should be managed, going through the 3 main MPN subtypes in order, but acknowledging the shades of grey that exist, and the need to treat each patient as an individual.
Patients seemed to be very engaged, and there was lots of chat in the afternoon tea break, and also some constructive to and fro between patients during the question time.
Videos of the two haematology presentations by Dr Eslick and Dr Forsyth are available for viewing on our MPN Video Presentations page.
Full details of the patient information afternoon, including powerpoint presentations from all the talks are available HERE.
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Benefits of exercise for MPN patients

There has been some recent media attention about the value of exercise for cancer patients.  In May 2018, Associate Professor Prue Cormie, an accredited exercise physiologist explained that 26 cancer organisations were calling for exercise to be prescribed to all cancer patients as part of routine cancer care.
See The Conversation – every cancer patient should be prescribed exercise medicine

Read more

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