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X-ORIGINAL-URL:https://www.mpnallianceaustralia.org.au
X-WR-CALDESC:Events for MPN Alliance Australia
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260223T100000
DTEND;TZID=Australia/Melbourne:20260223T113000
DTSTAMP:20260504T002918
CREATED:20260111T060008Z
LAST-MODIFIED:20260112T042950Z
UID:8744-1771840800-1771846200@www.mpnallianceaustralia.org.au
SUMMARY:Brisbane coffee and chat
DESCRIPTION:MPN AA team member Sandra\, is very kindly organising an MPN coffee and chat group in Brisbane.\nThis is in addition to the lunch group that meets quarterly at Fitzy’s tavern. \nIf you would like to chat with other MPN patients in the Brisbane area over a coffee\, please save the date of: \nDate: Monday 23 February at 10:00am\nVenue: Merlo Coffee Café\, Coorparoo\nWoolworths Centre\,\n19 Harries Road\n\nIf you’d like to attend\, please let Sandra know at mpnaa@mpnallianceaustralia.org.au.\n\nAnd if you are unable to attend on the 23rd February\, but would still like to catch up in future\, please also let Sandra know so she can build up a ‘coffee and chat mailing list’ to update you about future chats.\nmpnaa@mpnallianceaustralia.org.au.\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/brisbane-coffee-and-chat-2/
LOCATION:Merlo Coffee Cafe Coorparoo\, Woolworths Centre\, 19 Harries Road\, Coorparoo\, Qld\, 4151\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260131T103000
DTEND;TZID=Australia/Melbourne:20260131T123000
DTSTAMP:20260504T002918
CREATED:20260119T021642Z
LAST-MODIFIED:20260119T021642Z
UID:8788-1769855400-1769862600@www.mpnallianceaustralia.org.au
SUMMARY:Central coast MPN catch up
DESCRIPTION:Two MPN patients on the Central Coast have kindly organised a catch up for other MPN patients to chat\, learn from\, and support each other. \nDate: 31 January at 10.30am \nVenue: The Pantry\, Forresters Beach \nAddress: 5/960 The Entrance Road\, Forresters Beach \nRSVP: Please RSVP via the MPN AA mailbox at mpnaa@mpnallianceaustralia.org.au\nand we’ll pass your details onto the organisers\, Kathryn and Rebecca. \n  \n  \n \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/central-coast-mpn-catch-up/
LOCATION:The Pantry\, Forresters’ Beach\, 5/960 The Entrance Road\, Forresters' Beach\, Forresters Beach\, NSW\, 2260\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260117T124000
DTEND;TZID=Australia/Melbourne:20260117T150000
DTSTAMP:20260504T002918
CREATED:20260107T040913Z
LAST-MODIFIED:20260107T043845Z
UID:8728-1768653600-1768662000@www.mpnallianceaustralia.org.au
SUMMARY:Brisbane MPN lunch
DESCRIPTION:You are invited to join Lesley and other MPN patients for the first of her quarterly MPN LUNCH CATCH-UP’s at Fitzy’s Tavern Loganholme.\n\n\n\nThe table is booked for 12:40pm (not the usual 11:30am) on Saturday 17th January.\n\n\nLesley advises that the venue is mobility friendly & is within 40 minutes drive from Brisbane\, Ipswich\, Gold Coast & the Scenic Rim.\n\n\n\nPlease R.S.V.P. to Lesley by the 14th January if you can make it.\nHer no. is 0402 114 532.\n\n\nFamily & friends are welcome and she’d love to see you.\nIf you can’t make it this time\, you may like to save the dates for 2026:\n\n\nSat  11th April\nSat  11th July\nSat 14th November\n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/brisbane-mpn-lunch/
LOCATION:Fitzy’s tavern\, Loganholme\, Bryants Road and Pacific Hwy\, Loganholme\, Qld\, Queensland\, 4129\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260111T123000
DTEND;TZID=Australia/Melbourne:20260111T150000
DTSTAMP:20260504T002918
CREATED:20260107T045752Z
LAST-MODIFIED:20260107T045752Z
UID:8738-1768134600-1768143600@www.mpnallianceaustralia.org.au
SUMMARY:Newcastle MPN lunch
DESCRIPTION:Newcastle MPN patient\, Andrew\, has very kindly organised an MPN lunch in Newcastle so patients and their partners can connect.\n\nAndrew has polycythemia vera with the Jak2 mutation\, and is fairly newly diagnosed.\nHe would love to meet and chat with others with PV or MPN.\n\n\nPartners are very welcome as well. \n\n\nDate: Sunday 11th January\n\nPlease RSVP to Andrew on 0414 652 516\n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/newcastle-mpn-lunch/
LOCATION:Wickham Park Hotel\, 61 Maitland Road\, Islington\, Newcastle\, NSW\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20251201T103000
DTEND;TZID=Australia/Melbourne:20251201T120000
DTSTAMP:20260504T002918
CREATED:20251126T043508Z
LAST-MODIFIED:20251126T053506Z
UID:8583-1764585000-1764590400@www.mpnallianceaustralia.org.au
SUMMARY:Brisbane coffee and chat
DESCRIPTION:The MPN AA’s newest team member\, Sandra is kindly offering coffee and chats for MPN patients to connect with other MPN patients in the Brisbane area. \nIf you would like to attend\, the details are below. \nBellissimo Coffee Coorparoo\n12 Cavendish Road\nMonday 1 December at 10:30am\nPlease RSVP so Sandra knows to look out for you.\nRSVP by emailing mpnaa@mpnallianceaustralia.org.au. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/brisbane-coffee-and-chat/
LOCATION:Bellissimo Coffee Coorparoo\, 12 Cavendish Road\, Coorparoo\, Queensland\, 4151\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20251118T110000
DTEND;TZID=Australia/Melbourne:20251118T120000
DTSTAMP:20260504T002918
CREATED:20251105T023521Z
LAST-MODIFIED:20251105T023521Z
UID:8362-1763463600-1763467200@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - yoga for blood cancer wellbeing
DESCRIPTION:The Leukaemia Foundation is running two separate webinars titled ‘Discover the benefits of yoga for blood cancer wellbeing’. \nThe first is a ‘Calming session\, focussing on relaxation and grounding’\nIt is taking place on 18 November 2025 at: \n\n 11:00am – 12:00pm (VIC / NSW / ACT / TAS |\n 10:30am – 11:30am (SA) |\n 10:00am – 11:00am (QLD) |\n 9:30am – 10:30am (NT) |\n 8:00am-9:00am (WA)\n\nThe Leukaemia Foundation’s website has all the relevant information on how to register HERE. \nThe second webinar will be on Tuesday 25 November and will be an ‘Energising session\, focussing on vitality and uplift’. \nThe webinars will be recorded so you can watch them at a later date if that is preferable for you. \n  \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-yoga-for-blood-cancer-wellbeing/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251025
DTEND;VALUE=DATE:20251026
DTSTAMP:20260504T002918
CREATED:20250801T032849Z
LAST-MODIFIED:20251008T030025Z
UID:7993-1761350400-1761436799@www.mpnallianceaustralia.org.au
SUMMARY:MPN Education Symposium in Perth
DESCRIPTION:‘What does optimal management of MPNs look like in 2025’ \nMPN AA\, in partnership with the University of Western Australia School of Biomedical Sciences and Royal Perth Hospital\, is proudly presenting an MPN Education Symposium. \nIt is open to attendees both in person and on-line. \nPublicity flyer for MPN Education Symposium 25 October 2025 \nCovering ‘What does optimal management of my MPN look like in 2025’\, themes that will be covered include: \n\nUnderstanding and living with MPN\nWhat’s new in diagnosis?\nWhat’s new in testing?\nWhat’s new in treatment?\nWhat’s new in monitoring?\n\nWho should attend?\nMPN patients\, family members\, carers\, friends\, clinicians\, researchers and people interested in learning more about MPNs are welcome to attend.\nThere will be opportunities to ask questions and meet and chat with other participants throughout the day. \nWho will be presenting?\nUK haematologist Claire Harrison\, an international MPN expert will be presenting as well as many eminent Australian haematologists with subspeciality interests in myeloproliferative neoplasms as well as MPN researchers: \n\nProf Claire Harrison\nProf Andrew Perkins\nProf Wendy Erber\nAProf David Ross\nDr Cecily Forsyth\nDr Zi Yun Ng\nDr Belinda Guo\nDr Hun Chuah\nDr Xuan Ni Tan\nDr Ashlyn Chee\n\nThe program\nThe symposium program is available to download HERE. \nLinked here is an MPN 101 video that is recommended pre-conference viewing for attendees at the annual international MPN Horizons patient conference.\nWe thought attendees to our Perth symposium may also find it of interest to watch beforehand. \nHow to register\nYou will need to register to attend in person or to join online.\nHere is the link to the Symposium registration page. \n  \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mpn-education-symposium-in-perth/
LOCATION:WASON Building\, 161 Wellington St\, Perth\, Western Australia\, 6000
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20251010T113000
DTEND;TZID=Australia/Melbourne:20251010T130000
DTSTAMP:20260504T002918
CREATED:20251009T054310Z
LAST-MODIFIED:20251009T065414Z
UID:8301-1760095800-1760101200@www.mpnallianceaustralia.org.au
SUMMARY:Webinar – emotional side effects of blood cancer on relationships
DESCRIPTION:The Leukaemia Foundation is running a webinar about the emotional side effects of blood cancer on relationships. \nFriday 10 October 2025 \n11:30am – 1:00pm (VIC / NSW / ACT / TAS |\n 11:00am – 12:30pm (SA) |\n 10:30am – 12:00pm (QLD) |\n 10:00am – 11:30am (NT) |\n 8:30am-10:00am (WA) \nTitled\, ‘Coping together – The emotional side effects of blood cancer on relationships’ it will feature psychologist Dr Charlotte Tottman (Clinical Psycho-Oncologist) and MPN AA team member\, Sharon MacIntyre. \nSharon was diagnosed with essential thrombocythemia at the very young age of 18 and so has navigated many emotional ups and downs since then. She now has myelofibrosis. \nDr Charlotte Tottman provides psychological treatment for cancer-related distress. Dr Tottman works with cancer patients\, their family members\, and the people that care for them\, at all stages of their cancer experience. \nThe webinar will cover: \n\nCommon psychological responses to living with blood cancer\nManaging the adjustment between before & after diagnosis\nThe impact on relationships & communication\nStrategies to support you and your family\nHow to get help\n\nTo attend the webinar please register HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-emotional-side-effects-of-blood-cancer-on-relationships/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250821T190000
DTEND;TZID=Australia/Melbourne:20250821T200000
DTSTAMP:20260504T002918
CREATED:20250728T085908Z
LAST-MODIFIED:20250728T090042Z
UID:8102-1755802800-1755806400@www.mpnallianceaustralia.org.au
SUMMARY:Fatigue management - 3 session online series
DESCRIPTION:The Leukaemia Foundation is running a three session online series on fatigue and blood cancer for patients aged 20 to 65.\nDates:    21 August 2025\, 28 August\, 4 September\nTimes:\n7:00pm – 8:00pm (VIC / NSW / ACT / TAS / QLD) |\n6:30pm – 7:30pm (SA / NT) |\n5:00pm-6:00pm (WA) \nThe Leukaemia Foundation website advises that:\n“Are you 20-65 years old & need guidance on managing blood cancer-related fatigue? \nLiving with blood cancer brings unique physical\, emotional\, and practical challenges. This is especially true for adults navigating work\, relationships\, family responsibilities\, or studies. This 3-session program is specifically for people aged 20 to 65 who are living with cancer related fatigue. \nWhether you’re returning to work\, managing a family\, or simply trying to feel more like yourself again\, this group offers education\, practical tips\, peer support and discussion.\nRegistration is for all 3 sessions. We encourage you to attend all sessions to get the most out of the program. \nTopics:\n\nWhat is cancer-related fatigue\nHow exercise helps fatigue\nFatigue management strategies\n\nDates:\nThursday evenings 7:00pm-8.00pm (AEST)\n21 August / 28 August / 4 September” \nRegistration\nNumbers are limited and fill up quickly.\nYou can register HERE \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/fatigue-management-3-session-online-series/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250719T113000
DTEND;TZID=Australia/Melbourne:20250719T140000
DTSTAMP:20260504T002918
CREATED:20250617T041610Z
LAST-MODIFIED:20250617T041610Z
UID:7873-1752924600-1752933600@www.mpnallianceaustralia.org.au
SUMMARY:SE Qld MPN lunch
DESCRIPTION:A wonderful ‘MPN Lunch Catch-Up’ is regularly held for MPN patients living in Brisbane and surrounding areas.\nIt’s held 3-4 times a year. \nMPN patient Lesley is the organiser and explains that it’s a very casual lunch\, where you can meet and socialise with other MPN patients\, their families and friends.  It’s an agenda and medical free zone – just patients supporting patients.  Patients are also most welcome to bring loved ones along. \nThe lunch is self-funded. The menu can be found online and it is reasonably priced. However\, if lunch is not your thing\, coffee and cake are also available. \nThe next MPN lunch will be on Saturday the 19th of July from 11:30am at Fitzy’s Tavern Loganholme. \nPlease R.S.V.P. your attendance to Lesley by July 14th and if you have any questions\, please don’t hesitate to reach out to Lesley! \nLesley: 0402 114 532 \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/se-qld-mpn-lunch/
LOCATION:Fitzy’s tavern\, Loganholme\, Bryants Road and Pacific Hwy\, Loganholme\, Qld\, Queensland\, 4129\, Australia
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250617T190000
DTEND;TZID=Australia/Melbourne:20250617T203000
DTSTAMP:20260504T002918
CREATED:20250527T121427Z
LAST-MODIFIED:20250527T121657Z
UID:7839-1750186800-1750192200@www.mpnallianceaustralia.org.au
SUMMARY:20-40s support group - self identity and self image
DESCRIPTION:17 June 2025\, 7:00pm – 8:30pm (NSW / ACT / VIC / TAS / QLD) |\n6:30pm – 8:00pm (SA / NT) |\n5:00pm -6:30pm (WA) \nThe Leukaemia Foundation runs monthly blood cancer support groups for blood cancer patients who are aged between 20 and 40.\nThe upcoming topic is about self identity and self image. \nThe Leukaemia Foundation explains that “Self-identity is a combination of our personality traits\, abilities\, work\, physical attributes\, interests and social roles. The emotional and physical changes that come along with a blood cancer / disorder and treatment can change the way we perceive ourselves and how others see us. Join in for a discussion about how blood cancer / disorder impacts our self-identity\, and discuss ways to help adjust to these changes.” \nAs these groups are small\, it is important to register in advance.\nFor more information about the group and to register\, please see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/20-40s-support-group-self-identity-and-self-image/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250612T113000
DTEND;TZID=Australia/Melbourne:20250612T123000
DTSTAMP:20260504T002918
CREATED:20250527T120833Z
LAST-MODIFIED:20250527T121908Z
UID:7835-1749727800-1749731400@www.mpnallianceaustralia.org.au
SUMMARY:General support group - self identity and self image
DESCRIPTION:12 June 2025\, 11:30am – 12:30pm (NSW / ACT / VIC / TAS / QLD) |\n11am – 12pm (SA / NT) |\n9:30am – 10:30am (WA) \nThe Leukaemia Foundation runs monthly blood cancer support groups for blood cancer patients.\nThis is a group open to all blood cancer patients and the upcoming topic for this group is about self identity and self image. \nThe Leukaemia Foundation explains that “Self-identity is a combination of our personality traits\, abilities\, work\, physical attributes\, interests and social roles. The emotional and physical changes that come along with a blood cancer / disorder and treatment can change the way we perceive ourselves and how others see us. Join in for a discussion about how blood cancer / disorder impacts our self-identity\, and discuss ways to help adjust to these changes.” \nAs these groups are small\, it is important to register in advance.\nFor more information about the group and to register\, please see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/support-group-self-identity-and-self-image/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250610T190000
DTEND;TZID=Australia/Melbourne:20250610T203000
DTSTAMP:20260504T002918
CREATED:20250527T122508Z
LAST-MODIFIED:20250527T122508Z
UID:7845-1749582000-1749587400@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - exploring intimacy & maintaining connection through blood cancer
DESCRIPTION:10 June 2025\, 7:00pm – 8:30pm (VIC / NSW / ACT / TAS / QLD) |\n6:30pm – 8:00pm (SA / NT) |\n5:00pm-6:30pm (WA) \nThis webinar is being run by the Leukaemia Foundation. \nThe Leukaemia Foundation explain that the impact on relationships and intimacy during and after blood cancer is not always discussed. Diagnosis and treatment can change how you look\, think\, and feel about yourself. \nThis webinar is relevant whether you are single\, dating\, or in a short or long-term relationship.  You will learn more about connection\, affection\, pleasure\, and intimacy with the people you care about.  We aim to provide you with answers to the questions you have or may not have considered yet. \nYou will hear about:\n\nDesire vs. libido\nChanges in body image and energy levels\nPractical issues like / pain / fatigue / atrophy\nIdeas to explore pleasure and connection\nCommunication strategies\n\nIt is important to register for the webinar. \nFor more details and to register\, please see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-exploring-intimacy-maintaining-connection-through-blood-cancer/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250605T183000
DTEND;TZID=Australia/Melbourne:20250605T200000
DTSTAMP:20260504T002918
CREATED:20250527T120426Z
LAST-MODIFIED:20250527T120426Z
UID:7832-1749148200-1749153600@www.mpnallianceaustralia.org.au
SUMMARY:Watch and wait support group - self identity and self image
DESCRIPTION:5 June 2025\, 6:30pm – 8:00pm (NSW / ACT / VIC / TAS / QLD) |\n6:00pm – 7:30pm (SA / NT) |\n4:30pm -6:00pm (WA) \nThe Leukaemia Foundation runs monthly blood cancer support groups for blood cancer patients who are in the ‘watch and wait’ treatment category.\nThe upcoming topic for this group is about self identity and self image. \nThe Leukaemia Foundation explains that “Self-identity is a combination of our personality traits\, abilities\, work\, physical attributes\, interests and social roles. The emotional and physical changes that come along with a blood cancer / disorder and treatment can change the way we perceive ourselves and how others see us. Join in for a discussion about how blood cancer / disorder impacts our self-identity\, and discuss ways to help adjust to these changes.” \nAs these groups are small\, it is important to register in advance.\nFor more information about the group and to register\, please see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/watch-and-wait-support-group-self-identity-and-self-image/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250603T133000
DTEND;TZID=Australia/Melbourne:20250603T143000
DTSTAMP:20260504T002918
CREATED:20250527T115735Z
LAST-MODIFIED:20250527T115735Z
UID:7827-1748957400-1748961000@www.mpnallianceaustralia.org.au
SUMMARY:Men's support group - self identity\, self image
DESCRIPTION:3 June 2025\, 1:30pm – 2:30pm (NSW / ACT / VIC / TAS / QLD) |\n1:00pm – 2:00pm (SA / NT) |\n 11:30am – 12:30pm (WA) \nThe Leukaemia Foundation runs monthly blood cancer support groups for men.\nThe upcoming group is about self identity and self image. \nThe Leukaemia Foundation explains that “Self-identity is a combination of our personality traits\, abilities\, work\, physical attributes\, interests and social roles. The emotional and physical changes that come along with a blood cancer / disorder and treatment can change the way we perceive ourselves and how others see us. Join in for a discussion about how blood cancer / disorder impacts our self-identity\, and discuss ways to help adjust to these changes.” \nAs these groups are small\, it is important to register in advance.\nFor more information about the group and to register\, please see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mens-support-group-self-identity-self-image-2/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250527T110000
DTEND;TZID=Australia/Melbourne:20250527T123000
DTSTAMP:20260504T002918
CREATED:20250508T123334Z
LAST-MODIFIED:20250508T123334Z
UID:7719-1748343600-1748349000@www.mpnallianceaustralia.org.au
SUMMARY:Webinar: understanding the GP's role in blood cancer care
DESCRIPTION:The Leukaemia Foundation is running a webinar designed to help you understand the important role that General Practitioners (GPs) play in supporting health & well-being while living with blood cancer. \nWhether you’re newly diagnosed or managing long-term care\, this session will offer valuable information to help improve your experience with the healthcare system and foster the GP / patient relationship. \n27 May 2025\,\n 11:00am – 12:30pm (VIC / NSW / ACT / TAS / QLD) |\n 10:30am – 12:00pm (SA / NT) |\n 9:00am-10:30am (WA) \nFor more information and to register for the webinar\, see HERE \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-understanding-the-gps-role-in-blood-cancer-care/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250520T113000
DTEND;TZID=Australia/Melbourne:20250520T123000
DTSTAMP:20260504T002918
CREATED:20250421T105510Z
LAST-MODIFIED:20250421T105510Z
UID:7697-1747740600-1747744200@www.mpnallianceaustralia.org.au
SUMMARY:Care giver support group - self advocacy
DESCRIPTION:20 May 2025\n11:30am – 12:30pm (NSW / ACT / VIC / TAS / QLD) |\n11:00am – 12:00pm (SA / NT) |\n9:30am – 10:30am (WA) \nThe Leukaemia Foundation runs online support groups for blood cancer patients.\nThis group is a general blood cancer support group and the topic is self advocacy. \nThe Leukaemia Foundation advises that “Self-advocacy means taking an active role in your health care which requires understanding your own needs and communicating these needs with others. This can be challenging while living with blood cancer. In this group\, we will discuss the importance of self-advocacy in feeling heard and having your needs met. The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in being your own best advocate”. \nFor more information and to register (as numbers are limited) – see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/care-giver-support-group-self-advocacy/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250515T190000
DTEND;TZID=Australia/Melbourne:20250515T200000
DTSTAMP:20260504T002918
CREATED:20250421T105137Z
LAST-MODIFIED:20250421T105137Z
UID:7694-1747335600-1747339200@www.mpnallianceaustralia.org.au
SUMMARY:Blood cancer support group - self advocacy
DESCRIPTION:15 May 2025\n7:00pm – 8:00pm (NSW / ACT / VIC / TAS / QLD) |\n6:30pm – 7:30pm (SA / NT) |\n5:00pm – 6:00pm (WA) \nThe Leukaemia Foundation runs online support groups for blood cancer patients.\nThis group is a general blood cancer support group and the topic is self advocacy. \nThe Leukaemia Foundation advises that “Self-advocacy means taking an active role in your health care which requires understanding your own needs and communicating these needs with others. This can be challenging while living with blood cancer. In this group\, we will discuss the importance of self-advocacy in feeling heard and having your needs met. The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in being your own best advocate”. \nFor more information and to register (as numbers are limited) – see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/blood-cancer-support-group-self-advocacy-2/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250506T133000
DTEND;TZID=Australia/Melbourne:20250506T143000
DTSTAMP:20260504T002918
CREATED:20250421T104426Z
LAST-MODIFIED:20250421T104508Z
UID:7689-1746538200-1746541800@www.mpnallianceaustralia.org.au
SUMMARY:Men's support group - self advocacy
DESCRIPTION:6 May 2025\n 1:30pm – 2:30pm (NSW / ACT / VIC / TAS / QLD) |\n 1:00pm – 2:00pm (SA / NT) |\n 11:30am – 12:30pm (WA) \nThe Leukaemia Foundation runs online support groups for blood cancer patients.\nThis group is for men and the topic is self advocacy. \nThe Leukaemia Foundation advises that “Self-advocacy means taking an active role in your health care which requires understanding your own needs and communicating these needs with others. This can be challenging while living with blood cancer. In this group\, we will discuss the importance of self-advocacy in feeling heard and having your needs met. The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in being your own best advocate”. \nFor more information and to register (as numbers are limited) – see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mens-support-group-self-advocacy/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250409T130000
DTEND;TZID=Australia/Melbourne:20250409T140000
DTSTAMP:20260504T002918
CREATED:20250320T045628Z
LAST-MODIFIED:20250320T045628Z
UID:7490-1744203600-1744207200@www.mpnallianceaustralia.org.au
SUMMARY:Support group - living with uncertainty
DESCRIPTION:This general blood cancer support group is run by the Leukaemia Foundation. \n9 April 2025\,\n1:00pm – 2:00pm (NSW / ACT / VIC / TAS)\n12:30pm – 1:30pm (SA\, NT)\n11:00am – 12:00pm (WA) \nThe topic for this month is ‘living with uncertainty’. \nThe Leukaemia Foundation advises:\n‘Many aspects of a blood cancer diagnosis can put us in a state of ‘not knowing’ or being unsure about the future. This can lead to feelings of stress\, anxiety and helplessness. However\, uncertainty is an unavoidable part of life. In this group we will discuss how uncertainty shows up in our lives and share strategies on how to cope with uncertainty in healthy ways.’ \nIt is necessary to register.\nSo for more information and to register\, please see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/support-group-living-with-uncertainty/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250408T133000
DTEND;TZID=Australia/Melbourne:20250408T143000
DTSTAMP:20260504T002918
CREATED:20250320T045147Z
LAST-MODIFIED:20250320T045147Z
UID:7484-1744119000-1744122600@www.mpnallianceaustralia.org.au
SUMMARY:Men's support group - living with uncertainty
DESCRIPTION:This men’s support group is run by the Leukaemia Foundation. \n8 April 2025\,\n1:30pm – 2:30pm (NSW / ACT / VIC / TAS)\n1:00pm – 2:00pm (SA\, NT)\n11:30am – 12:30pm (WA) \nThe topic for this month is ‘living with uncertainty’. \nThe Leukaemia Foundation advises:\n‘Many aspects of a blood cancer diagnosis can put us in a state of ‘not knowing’ or being unsure about the future. This can lead to feelings of stress\, anxiety and helplessness. However\, uncertainty is an unavoidable part of life. In this group we will discuss how uncertainty shows up in our lives and share strategies on how to cope with uncertainty in healthy ways.’ \nIt is necessary to register.\nSo for more information and to register\, please see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mens-support-group-living-with-uncertainty/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250403T190000
DTEND;TZID=Australia/Melbourne:20250403T200000
DTSTAMP:20260504T002918
CREATED:20250312T113728Z
LAST-MODIFIED:20250320T043642Z
UID:7467-1743706800-1743710400@www.mpnallianceaustralia.org.au
SUMMARY:Watch and wait group: living with uncertainty
DESCRIPTION:This ‘watch and wait’ support group is run by the Leukaemia Foundation for those diagnosed with blood cancer who have not received any active treatment. \n3 April 2025\,\n 7:00pm – 8:30pm (NSW / ACT / VIC / TAS)\n6:30pm – 8:00pm (SA)\n6:00pm – 7:30pm (QLD)\n 5:30pm – 7:00pm (NT)\n 4:00pm -5:30pm (WA) \nThe topic for this month is ‘living with uncertainty’. \nThe Leukaemia Foundation advises:\n‘Many aspects of a blood cancer diagnosis can put us in a state of ‘not knowing’ or being unsure about the future. This can lead to feelings of stress\, anxiety and helplessness. However\, uncertainty is an unavoidable part of life. In this group we will discuss how uncertainty shows up in our lives and share strategies on how to cope with uncertainty in healthy ways.’ \nIt is necessary to register.\nSo for more information and to register\, please see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-group-watch-and-wait/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250325T113000
DTEND;TZID=Australia/Melbourne:20250325T130000
DTSTAMP:20260504T002918
CREATED:20250311T043845Z
LAST-MODIFIED:20250311T043845Z
UID:7450-1742902200-1742907600@www.mpnallianceaustralia.org.au
SUMMARY:Seminar: Life after transplant – rebuilding health & wellbeing
DESCRIPTION:Date: Tuesday 25 March 2025\nOnline via zoom\n11:30am – 1:00pm (VIC / NSW / ACT / TAS) |\n11:00am – 12:30pm (SA) |\n10:30am – 12:00pm (QLD) |\n10:00am – 11:30am (NT) |\n8:30am-10:00am (WA)\nThe Leukaemia Foundation is running an online seminar dealing with life post transplant. \nThe information states… \n‘Have you survived the first 6-12 months of recovery from an Autologous or Allogeneic Transplant & want to learn more about long term recovery & go beyond surviving\, to thriving?  Join us for this informative session covering long term recovery expectations & ideas to improve wellbeing & quality of life.’ \nTopics covered will include: \n\nHealth and Wellbeing: Tips on managing your physical and emotional health\nExercise: The important role exercise plays\nLong term effects: Information on common effects and strategies for managing\nPeer discussion: An opportunity to hear others’ experiences\, ask questions\, and connect with others who understand\n\nWhilst the seminar is free\, you will need to register HERE \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/seminar-life-after-transplant-rebuilding-health-wellbeing/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250313T190000
DTEND;TZID=Australia/Melbourne:20250313T200000
DTSTAMP:20260504T002918
CREATED:20250312T112214Z
LAST-MODIFIED:20250312T112214Z
UID:7464-1741892400-1741896000@www.mpnallianceaustralia.org.au
SUMMARY:Online support group: fear of recurrence or progression
DESCRIPTION:7:00pm – 8:00pm (NSW / ACT / VIC / TAS) \n6:30pm – 7:30pm (SA) \n6:00pm – 7:00pm (QLD)\n5:30pm – 6:30pm (NT)\n4:00pm – 5:00pm (WA) \nThe Leukaemia Foundation runs online support groups via zoom. They advise that: \n‘One of the greatest concerns for people living with blood cancer is the worry of blood cancer returning (or in the case of MPNs progressing). Subsequent feelings of fear\, uncertainty and anxiety are very common. For some\, these feelings are mild\, for others they are significant & may impact on your quality of life. Living with these feelings can be really challenging. In this group\, we will have the opportunity to explore these feelings in a safe space\, as well as discuss strategies to help manage living with this uncertainty.’ \nFor further information and to register\, please see HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-group-fear-of-recurrence-or-progression/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241112T190000
DTEND;TZID=Australia/Melbourne:20241112T203000
DTSTAMP:20260504T002918
CREATED:20241017T060626Z
LAST-MODIFIED:20241017T060626Z
UID:6986-1731438000-1731443400@www.mpnallianceaustralia.org.au
SUMMARY:Online support group: surviving and thriving with blood cancer
DESCRIPTION:12 November 2024\, \n7:00pm – 8:30pm (NSW / ACT / VIC / TAS) |\n 6:30pm – 8:00pm (SA) |\n 6:00pm – 7:30pm (QLD) |\n 5:30pm – 7:00pm (NT) |\n4:00pm – 5:30pm (WA) \nThe Leukaemia Foundation regularly runs online support groups for patients with blood cancer. \nThe upcoming support group discusses what does it mean to survive blood cancer.\nThe Leukaemia Foundation states that ‘For many\, blood cancer is a chronic disease so the concept “survivor” may be hard to relate to. While the aim of blood cancer management is to not only survive blood cancer but to thrive\, we will explore both the physical and emotional reality of this along with some guidance to enable you to live as well as possible.’ \nFor more information and to register\, see HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-group-surviving-and-thriving-with-blood-cancer/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241112T133000
DTEND;TZID=Australia/Melbourne:20241112T143000
DTSTAMP:20260504T002918
CREATED:20241017T061502Z
LAST-MODIFIED:20241017T061502Z
UID:6989-1731418200-1731421800@www.mpnallianceaustralia.org.au
SUMMARY:Men's online support group: surviving and thriving with blood cancer
DESCRIPTION:12 November 2024\,\n1:30pm – 2:30pm (NSW / ACT / VIC / TAS) |\n1:00pm – 2:00pm (SA) |\n12:30pm – 1:30pm (QLD) |\n12:00pm – 1:00pm (NT) |\n10:30am – 11:30am (WA) \nThe Leukaemia Foundation regularly runs online support groups for patients with blood cancer. \nThe upcoming support group is for men.  It discusses what does it mean to survive blood cancer.\nThe Leukaemia Foundation states that ‘For many\, blood cancer is a chronic disease so the concept “survivor” may be hard to relate to. While the aim of blood cancer management is to not only survive blood cancer but to thrive\, we will explore both the physical and emotional reality of this along with some guidance to enable you to live as well as possible.’ \nFor more information and to register\, see HERE. \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mens-online-support-group-surviving-and-thriving-with-blood-cancer/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241011T113000
DTEND;TZID=Australia/Melbourne:20241011T130000
DTSTAMP:20260504T002918
CREATED:20240914T120329Z
LAST-MODIFIED:20240914T120329Z
UID:6836-1728646200-1728651600@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - Beyond the diagnosis: exploring mental health and blood cancer
DESCRIPTION:11:30am – 1:00pm (NSW / ACT / VIC / TAS)\n11:00am – 12:30pm (SA)\n10:30am – 12:00pm (QLD) \n10:00am – 11:30am (NT)\n 8:30am – 10:00am (WA) \nThe Leukaemia Foundation advises that ‘A blood cancer diagnosis can have a significant psychological impact on your health and wellbeing. Feelings of anxiety\, low mood\, loss of control and fear are very common and can occur at any time after diagnosis. This can be difficult to talk about and hard to find the right support\, especially when everyone says you are doing well. \nJoin us as we explore how your mental health can be affected by blood cancer and what you can do about it.’ \n\nRegister now\n\nGuest Speaker: Dr Charlotte Tottman (Clinical Psycho-Oncologist)\nDr Tottman provides psychological treatment for cancer-related distress. Charlotte works with cancer patients\, their family members\, and carers\, at all stages of their cancer experience. \nYou will hear about: \n\nCommon psychological issues associated with a cancer diagnosis\nImmediate and long-term impact\n‘Less known’ psychological effects\, e.g: survivor guilt / loss of body confidence\nStrategies to support you and your family\nResources available\n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-beyond-the-diagnosis-exploring-mental-health-and-blood-cancer/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241009T190000
DTEND;TZID=Australia/Melbourne:20241009T203000
DTSTAMP:20260504T002918
CREATED:20240914T121043Z
LAST-MODIFIED:20240914T121043Z
UID:6840-1728500400-1728505800@www.mpnallianceaustralia.org.au
SUMMARY:20's-40's online peer support group program
DESCRIPTION:Dates:\nWednesday evenings 7pm-8.30pm (AEDT)\n9 October / 23 October / 6 November / 20 November / 4 December\n7pm – 8:30pm (VIC / NSW / ACT / TAS)\n6:30pm – 8pm (SA)\n6pm – 7:30pm (QLD)\n5:30pm – 7pm (NT)\n4pm-6:30pm (WA) \nThe Leukaemia Foundation advises ‘Whether you were diagnosed 1 month\, 1 year or many years ago\, a blood cancer diagnosis can have immediate and long-lasting effects. Join us to explore relevant topics with a group of other young people between the age of 20 – 49 who just ‘get it’.  The aim of the 5 session group is to share with others experiencing similar challenges and to learn from each other in a safe\, non-judgmental\, supportive space. \nTopics Covered\n\nGetting to know you: Meeting each other & sharing experiences\nCommunication & relationships: Talking about blood cancer with others\nLife transitions after diagnosis: Transitions to work / study / other roles\nSensitive conversations:? On sexuality / intimacy / fertility & taboo topics\nWhere to from here: How we see ourselves / long term support\n\nRegistration\nNumbers are limited and fill up quickly. For more information and to register for this 5-session series – HERE \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/20s-40s-online-peer-support-group-program/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240925T110000
DTEND;TZID=Australia/Melbourne:20240925T123000
DTSTAMP:20260504T002918
CREATED:20240914T115536Z
LAST-MODIFIED:20240915T070655Z
UID:6832-1727262000-1727267400@www.mpnallianceaustralia.org.au
SUMMARY:Blood cancer support group - speaking up for yourself
DESCRIPTION:11:00am – 12:30pm (QLD / NSW / ACT / VIC / TAS)\n 10:30am – 12:00pm (SA / NT) \n9:00am – 10:30am (WA) \nThe Leukaemia Foundation runs online support groups.  This group is open to all blood cancer patients. \nThe Leukaemia Foundation advises that ‘We will discuss the importance of feeling heard and having your needs met.  This means taking an active role in your own health care.   The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in speaking up for yourself.’ \nThese groups are interactive in nature & your participation is valued.  Where possible\, we encourage cameras to be turned on for the session to create a warm and safe environment for all participants. \nGroup sizes are limited so registration is essential.\nYou can register HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-group-speaking-up-for-yourself/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240919T113000
DTEND;TZID=Australia/Melbourne:20240919T130000
DTSTAMP:20260504T002918
CREATED:20240914T114838Z
LAST-MODIFIED:20240914T114838Z
UID:6827-1726745400-1726750800@www.mpnallianceaustralia.org.au
SUMMARY:Watch and wait support group - speaking up for yourself
DESCRIPTION:11.30am – 1.00pm (Qld\, NSW\, ACT\, Vic\, Tas)\n11.00am -12.30pm (SA\, NT)\n9.30am – 11.00am (WA) \nThe Leukaemia Foundation runs online support groups.  This group is for blood cancer patients who are on ‘watch and wait’. \nThe Leukaemia Foundation advises that ‘We will discuss the importance of feeling heard and having your needs met.  This means taking an active role in your own health care.   The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in speaking up for yourself.’ \nThese groups are interactive in nature & your participation is valued.  Where possible\, we encourage cameras to be turned on for the session to create a warm and safe environment for all participants. \nGroup sizes are limited so registration is essential.\nYou can register HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/watch-and-wait-support-group-speaking-up-for-yourself/
LOCATION:Virtually via Zoom
END:VEVENT
END:VCALENDAR