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X-WR-CALDESC:Events for MPN Alliance Australia
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20221026T183000
DTEND;TZID=Australia/Melbourne:20221026T200000
DTSTAMP:20260504T163907
CREATED:20221024T114527Z
LAST-MODIFIED:20221024T115210Z
UID:5041-1666809000-1666814400@www.mpnallianceaustralia.org.au
SUMMARY:Online support group - self identity\, self image
DESCRIPTION:The Leukaemia Foundation’s October support group is about self identity and self image.\nSelf-identity is a combination of our personality traits\, abilities\, physical attributes\, interests\, hobbies\, and social roles. The many emotional and physical changes that can come along with a blood cancer diagnosis and treatment can change the way we perceive ourselves.\nJoin an experienced Leukaemia Foundation facilitator and fellow patients in a discussion about how a blood cancer diagnosis has impacted our self-identity\, and talk through some ways that we can accept these changes and communicate them to our loved ones. \nPlease note that the time is listed in AEDT. \nYou can register HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-group-self-identity-self-image/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20221013T180000
DTEND;TZID=Australia/Melbourne:20221013T193000
DTSTAMP:20260504T163907
CREATED:20220908T021529Z
LAST-MODIFIED:20220908T021529Z
UID:4935-1665684000-1665689400@www.mpnallianceaustralia.org.au
SUMMARY:Myeloproliferative Neoplasms - Towards Precision Medicine
DESCRIPTION:Monash Medicine Nursing and Health Sciences – CCS Community and Researcher Engagement Program (CaRE) presents this hybrid event. \nMyeloproliferative neoplasms (MPNs) are a rare\, difficult to treat group of blood cancers. Understanding the genetic lesions in MPNs can transform diagnosis\, prognosis and treatment. \nPlease join us as we discuss the role of genetics and new therapeutic options in MPNs\, and how medical staff\, researchers and the MPN community can work together towards precision diagnostics for MPN patients. \n\n\n\n\n\nThis hybrid event takes place on 13 October 2022. You will need to register to attend in person or online. Registration details are provided using this Eventbrite link.\n\nFor more information see the flyer HERE\n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/myeloproliferative-neoplasms-towards-precision-medicine/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220927T190000
DTEND;TZID=Australia/Melbourne:20220927T203000
DTSTAMP:20260504T163907
CREATED:20220922T123350Z
LAST-MODIFIED:20220922T123531Z
UID:5000-1664305200-1664310600@www.mpnallianceaustralia.org.au
SUMMARY:Evening blood cancer support group
DESCRIPTION:These blood cancer support groups are facilitated by the Leukaemia Foundation’s experienced blood cancer support coordinators. They are small\, confidential groups\, and interactive in nature with discussion focusing on the lived experience of participants: essentially\, sharing what it’s really like to live with blood cancer with others who can relate. Some participants have said ‘it helps them feel less alone’. \nOne of the greatest concerns for people living with blood cancer is the worry of blood cancer returning or in the case of MPN patients\, of the MPN progressing. \nSubsequent feelings of fear\, uncertainty and anxiety are very common. For some\, these feelings are mild\, for others they are significant and may impact on your quality of life.\nLiving with these feelings can be really challenging.\nIn this group\, we will have the opportunity to explore these feelings in a safe and supportive space\, as well as discuss strategies to help manage living with this uncertainty. \nAs places are limited.  You will need to register HERE. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/evening-blood-cancer-support-group/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220914T190000
DTEND;TZID=Australia/Melbourne:20220914T203000
DTSTAMP:20260504T163907
CREATED:20220908T131630Z
LAST-MODIFIED:20220908T131630Z
UID:4970-1663182000-1663187400@www.mpnallianceaustralia.org.au
SUMMARY:Online support groups for September
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nUpcoming support groups for September are about ‘Fear of Blood Cancer Recurrence’. \nOne of the greatest concerns for people living with blood cancer is the worry of blood cancer returning or in the case of MPN patients\, the fear of the MPN progressing to myelofibrosis or acute myeloid leukaemia.  Subsequent feelings of fear\, uncertainty and anxiety are very common. For some\, these feelings are mild\, for others they are significant and may impact on quality of life. Living with these feelings can be really challenging. In this group\, we will have the opportunity to explore these feelings in a safe and supportive space\, as well as discuss strategies to help manage living with this uncertainty. \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited.  \nThere is also a mailing list from the Leukaemia Foundation which you can ask to join if you would appreciate as much notice as possible about the upcoming events.\nwww.leukaemia.org.au/events \n\n\n\nDate\nTime (AEST)\nTopic\n\n\n14 September\n7.00-8.30pm\nYoung adult support group – Fear of blood cancer recurrence\n\n\n27 September\n7.00-8.30pm\nEvening support group – Fear of blood cancer recurrence\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-groups-for-september/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220908T130000
DTEND;TZID=Australia/Melbourne:20220908T143000
DTSTAMP:20260504T163907
CREATED:20220829T121205Z
LAST-MODIFIED:20220829T121503Z
UID:4894-1662642000-1662647400@www.mpnallianceaustralia.org.au
SUMMARY:Leukaemia Foundation's upcoming support groups for September
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nUpcoming support groups for September are about ‘Fear of Blood Cancer Recurrence’. \nOne of the greatest concerns for people living with blood cancer is the worry of blood cancer returning or in the case of MPN patients\, the fear of the MPN progressing to myelofibrosis or acute myeloid leukaemia.  Subsequent feelings of fear\, uncertainty and anxiety are very common. For some\, these feelings are mild\, for others they are significant and may impact on quality of life. Living with these feelings can be really challenging. In this group\, we will have the opportunity to explore these feelings in a safe and supportive space\, as well as discuss strategies to help manage living with this uncertainty. \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited.  \nThere is also a mailing list from the Leukaemia Foundation which you can ask to join if you would appreciate as much notice as possible about the upcoming events.\nwww.leukaemia.org.au/events \n\n\n\nDate\nTime (AEST)\nTopic\n\n\n8 September\n1.00-2.30pm\nAll welcome – Fear of blood cancer recurrence\n\n\n14 September\n7.00-8.30pm\nYoung adult support group – Fear of blood cancer recurrence\n\n\n27 September\n7.00-8.30pm\nEvening support group – Fear of blood cancer recurrence\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/leukaemia-foundations-upcoming-support-groups-for-september/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220902T110000
DTEND;TZID=Australia/Melbourne:20220902T123000
DTSTAMP:20260504T163907
CREATED:20220829T122641Z
LAST-MODIFIED:20220829T123244Z
UID:4900-1662116400-1662121800@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - exploring emotions\, blood cancer and you
DESCRIPTION:The Leukaemia Foundation warmly invites you to this important webinar where they will be exploring some of the common reactions and experiences that accompany life with blood cancer. These might impact our emotions\, adjustment\, relationships\, expectations\, and wellbeing. \nThese challenges can change how you think and feel about yourself and your life\, no matter how long you have been living with blood cancer or what stage of life you are at. \nThe webinar features Dr Charlotte Tottman who speaks with warmth and passion as a clinical psychologist specialising in the cancer experience and as a survivor of cancer.  She brings a dual professional and personal experience to her presentations that focus on practical strategies. \nYou will hear about: \n\nCommon psychological responses to blood cancer\nManaging expectations\nCommunication / relationships & intimacy\nFear of recurrence or progression\nPractical strategies for managing these common experiences\n\nThe Leukaemia Foundation will also have a person living with blood cancer sharing his personal experience of navigating blood cancer and life after diagnosis. \nThe webinar is free to attend via zoom.  You can find out more and register  HERE. \nAnd recordings of previous webinars which cover a range of topics of interest to MPN patients are available HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-exploring-emotions-blood-cancer-and-you/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220825T190000
DTEND;TZID=Australia/Melbourne:20220825T203000
DTSTAMP:20260504T163907
CREATED:20220727T120541Z
LAST-MODIFIED:20220817T122215Z
UID:4757-1661454000-1661459400@www.mpnallianceaustralia.org.au
SUMMARY:Leukaemia Foundation's online blood cancer support groups for August
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nUpcoming support groups for August are about ‘negative thoughts\, positive actions’. \nAs humans\, we are often geared to think in a more negative way. This most certainly applies when someone is diagnosed with blood cancer. It is well established\, if we can shift negative thoughts into more realistic / positive thoughts & actions\, our quality of life & managing the daily impact of blood cancer can be improved. Together\, we will discuss the challenges of negative thinking & some simple strategies for shifting these thinking patterns to enable you to better manage life day to day. \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited.  \nThere is also a mailing list from the Leukaemia Foundation which you can ask to join if you would appreciate as much notice as possible about the upcoming events.\nwww.leukaemia.org.au/events \n\n\n\nDate\nTime (AEST)\nTopic\n\n\n25 August\n7.00-8.30pm\nAll welcome – Negative thoughts\, positive actions\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-for-august/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220816T110000
DTEND;TZID=Australia/Melbourne:20220816T123000
DTSTAMP:20260504T163907
CREATED:20220727T122317Z
LAST-MODIFIED:20220727T125529Z
UID:4761-1660647600-1660653000@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - nutrition and blood cancer
DESCRIPTION:The Leukaemia Foundation is running a free webinar presentation featuring the MPNAA ‘s Nathalie Cook (who is an accredited dietician and nutritionist) and internationally known chef\, Jason Roberts.  \nViewers will be inspired by the knowledge that they gain about nutritious and easy to prepare delicious food.  \nViewers will also discover:  \n\nNutrition Myth Busters \nThe principles of healthy eating \nJason demonstrating how to make easy and nutritious meals on a budget\n\nYou can find out more information about the webinar HERE. \n\nOr register now with the Leukaemia Foundation\n\n\n  \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-nutrition-and-blood-cancer/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220713T190000
DTEND;TZID=Australia/Melbourne:20220713T203000
DTSTAMP:20260504T163907
CREATED:20220623T062306Z
LAST-MODIFIED:20220709T122827Z
UID:4612-1657738800-1657744200@www.mpnallianceaustralia.org.au
SUMMARY:Online blood cancer support groups for July
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nUpcoming support groups for July are about ‘self advocacy’. \nSelf-advocacy means taking an active role in your health care which requires understanding your own needs and communicating these needs with others. This can be challenging while living with blood cancer. In this group\, we will discuss the importance of self-advocacy in feeling heard and having your needs met. The aim of this group is to share personal experience and to provide strategies to enable you to be more confident in being ”your own best advocate”. \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEST)\nTopic\n\n\n13 July\n7.00pm-8.30pm\nSelf advocacy\n\n\n25 July\n11.00am-12.30pm\nSelf advocacy\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-for-july/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220621T173000
DTEND;TZID=Australia/Melbourne:20220621T190000
DTSTAMP:20260504T163907
CREATED:20220620T111628Z
LAST-MODIFIED:20220620T112709Z
UID:4566-1655832600-1655838000@www.mpnallianceaustralia.org.au
SUMMARY:COVID Winter Update
DESCRIPTION:With the winter now upon us and the cases of COVID rising again in Australia\, the Leukaemia Foundation has organised an update on COVID for blood cancer patients. \nSpeakers will be:\nAssociate Professor Nada Hamad who is a Clinical Haematologist at St Vincent’s Hospital\, Sydney and\nDr Krispin Hajkowicz who is an Infectious Diseases Specialist at the Royal Brisbane & Women’s Hospital \n\nFor more information please see the Leukaemia Foundation’s website or you can simply REGISTER HERE \n\n\n  \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/covid-winter-update/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220607T190000
DTEND;TZID=Australia/Melbourne:20220607T203000
DTSTAMP:20260504T163907
CREATED:20220324T051820Z
LAST-MODIFIED:20220531T000327Z
UID:4428-1654628400-1654633800@www.mpnallianceaustralia.org.au
SUMMARY:Online blood cancer support groups for June
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for June are outlined below. \n7 June and 23 June : ‘Vulnerability and Resilience’ \nEveryone experiences some level of vulnerability when faced with a hazard\, trauma or disaster. The diagnosis of a blood cancer is certainly an event that challenges a person’s health\, wellbeing and capacity to cope. Resilience is the ability for a person to overcome traumatic events that impact health and well-being.  In this session the group will explore what it means to be vulnerable in the context of a blood cancer diagnosis\, consider the concept that ‘out of your vulnerabilities will come your strength’ and discuss strategies to build resilience. \n15 June – a Carers’ blood cancer support group – ‘Vulnerability and Resilience’ \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n7 June\n7.00pm -8.30pm\nVulnerability and resilience\n\n\n15 June\n11am-12.30pm\nCarers’ blood cancer support group – Vulnerability and resilience\n\n\n23 June\n1.00pm-2.30pm\nVulnerability and resilience\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-for-april/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220530T110000
DTEND;TZID=Australia/Melbourne:20220530T123000
DTSTAMP:20260504T163907
CREATED:20220504T070404Z
LAST-MODIFIED:20220523T111927Z
UID:4506-1653908400-1653913800@www.mpnallianceaustralia.org.au
SUMMARY:Men's online blood cancer support group
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects.  There is a Men’s blood cancer support group on 30 May. \nTopic: Self Care\nThe diagnosis of blood cancer is ‘a marathon\, not a sprint’.  Taking care of ourselves & others is a key ingredient in how one paces themselves for this ‘marathon’.  We will explore some of the barriers in life that stop us from taking care of ourselves\, as well as discuss the benefits & explore different ways to take on self-care in our daily lives. \nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n30 May\n11.00am-12.30pm\nMen’s blood cancer support group – self care\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-for-may/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220525T110000
DTEND;TZID=Australia/Melbourne:20220525T123000
DTSTAMP:20260504T163907
CREATED:20220504T071425Z
LAST-MODIFIED:20220504T071805Z
UID:4514-1653476400-1653481800@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - blood cancer and the brain
DESCRIPTION:The Leukaemia Foundation is running a webinar about blood cancer and the brain. \nHave you experienced changes in your memory\, thinking or ability to multitask since living with blood cancer?  You may have heard the terms ‘chemo brain’ or ‘brain fog’ to describe this experience. This is a common phenomenon that is not well understood yet it can have a significant impact on your quality of life. \nIn this webinar\, guest speakers:\nProfessor Janette Vardy – Medical oncologist and clinician researcher\, Concord Cancer Centre and the University of Sydney\, and\nPippa LaBuc – Senior Occupational Therapist\, Peter MacCallum Cancer Centre\, Melbourne\,\nwill speak about what ‘cancer related cognitive impairment’ is\, why it happens and strategies to manage it. \nThe Leukaemia Foundation encourages you to pre-submit your questions prior to the webinar at the time of registration or by emailing osg@leukaemia.org.au. \n\nRegister now\n\n\n  \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-blood-cancer-and-the-brain/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220317T190000
DTEND;TZID=Australia/Melbourne:20220317T203000
DTSTAMP:20260504T163907
CREATED:20220307T023050Z
LAST-MODIFIED:20220307T023050Z
UID:4404-1647543600-1647549000@www.mpnallianceaustralia.org.au
SUMMARY:Online support groups for March
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for March are outlined below. \n17\, 23 March – Managing fatigue \nCancer-related fatigue is a common experience for people living with blood cancer. It’s important to understand what causes it and how it differs from general fatigue.  Apart from the obvious physical impact on everyday life\, it can also affect mental health and functioning.  During this session\, we explore expectations and understanding of fatigue\, management strategies and where to seek professional support.  Together\, we will share our personal experience\, knowledge and resources to assist one another in managing fatigue.\nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n17 March\n7.00pm-8.30pm\nManaging fatigue\n\n\n23 March\n7.00pm-8.30pm\nYoung adults blood cancer support group:\nManaging fatigue\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-groups-for-march/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220304T120000
DTEND;TZID=Australia/Melbourne:20220304T133000
DTSTAMP:20260504T163907
CREATED:20220221T023404Z
LAST-MODIFIED:20220221T093747Z
UID:4362-1646395200-1646400600@www.mpnallianceaustralia.org.au
SUMMARY:Online blood cancer support groups for March
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for March are outlined below. \n4\, 17\, 23 March – Managing fatigue \nCancer-related fatigue is a common experience for people living with blood cancer. It’s important to understand what causes it and how it differs from general fatigue.  Apart from the obvious physical impact on everyday life\, it can also affect mental health and functioning.  During this session\, we explore expectations and understanding of fatigue\, management strategies and where to seek professional support.  Together\, we will share our personal experience\, knowledge and resources to assist one another in managing fatigue.\nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n4 March\n12:00pm – 1:30pm\nManaging fatigue\n\n\n17 March\n7.00pm-8.30pm\nManaging fatigue\n\n\n23 March\n7.00pm-8.30pm\nYoung adults blood cancer support group:\nManaging fatigue\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-for-march/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220216T190000
DTEND;TZID=Australia/Melbourne:20220216T203000
DTSTAMP:20260504T163907
CREATED:20220211T033216Z
LAST-MODIFIED:20220211T102410Z
UID:4345-1645038000-1645043400@www.mpnallianceaustralia.org.au
SUMMARY:Online blood cancer support groups
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for February and March are outlined below. \n16 February –  ‘Living alongside COVID’.\nBoth blood cancer and the COVID pandemic can be described as feeling like “a marathon not a sprint”. The extended nature of the pandemic has caused many physical\, emotional and financial challenges\, particularly for those living with blood cancer. In this group\, we’ll discuss the long term impact\, with a focus on how to balance living life while managing your health during a time of uncertainty. This is not meant to be a medical information session\, rather a discussion on the impact the pandemic has had on our wellbeing.\nFor more information and to register\, please see HERE. \n4\, 17\, 23 March – Managing fatigue \nCancer-related fatigue is a common experience for people living with blood cancer. It’s important to understand what causes it and how it differs from general fatigue.  Apart from the obvious physical impact on everyday life\, it can also affect mental health and functioning.  During this session\, we explore expectations and understanding of fatigue\, management strategies and where to seek professional support.  Together\, we will share our personal experience\, knowledge and resources to assist one another in managing fatigue.\nFor more information and to register\, please see HERE. \nPlease note that it is important to register early as numbers are limited. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n16 February\n7.00pm-8.30pm\nLiving alongside COVID\n\n\n4 March\n12:00pm – 1:30pm\nManaging fatigue\n\n\n17 March\n7.00pm-8.30pm\nManaging fatigue\n\n\n23 March\n7.00pm-8.30pm\nYoung adults blood cancer support group:\nManaging fatigue\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups-2/
LOCATION:Virtually via Zoom
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20220215T113000
DTEND;TZID=Australia/Melbourne:20220215T130000
DTSTAMP:20260504T163907
CREATED:20220210T230843Z
LAST-MODIFIED:20220210T231200Z
UID:4347-1644924600-1644930000@www.mpnallianceaustralia.org.au
SUMMARY:COVID-19 developments - fact and fiction
DESCRIPTION:The Leukaemia Foundation recognises that as the COVID-19 pandemic evolves\, many people with blood cancer are looking for trusted sources of information to help them make informed decisions and sort the fact from fiction. \nSo the Leukaemia Foundation is running a webinar to update people on COVID-19.  Speakers will be:\n– Associate Professor Nada Hamad (Clinical Haematologist\, St Vincent’s Hospital) and\n– Associate Professor Antoinette Anazodo (Paediatric Haematologist/Oncologist\, Kids Cancer Centre\, Sydney Children’s Hospital). \nThe topics covered in this webinar will be based on pre-submitted questions from the audience. If you have something specific you’d like answered\, we encourage you to submit it on the registration form or send it to osg@leukaemia.org.au \nTo attend\, you will need to register HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/covid-19-developments-fact-and-fiction/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20211213T130000
DTEND;TZID=Australia/Melbourne:20211213T143000
DTSTAMP:20260504T163907
CREATED:20211130T092133Z
LAST-MODIFIED:20211206T092636Z
UID:4206-1639400400-1639405800@www.mpnallianceaustralia.org.au
SUMMARY:Online blood cancer support groups
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for December are outlined below. \nPlease note that it is important to register early as numbers are limited to 15. \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\n13 December\n1:00pm – 2:30pm\nCoping with the festive season\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-blood-cancer-support-groups/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20211117T063000
DTEND;TZID=Australia/Melbourne:20211117T080000
DTSTAMP:20260504T163907
CREATED:20211112T203234Z
LAST-MODIFIED:20211112T203234Z
UID:4135-1637130600-1637136000@www.mpnallianceaustralia.org.au
SUMMARY:Webinar about myelofibrosis
DESCRIPTION:The US organisation MPN Advocacy and Education International runs many patient education events. \nThe next event is a patient webinar with two MPN Specialists from the US who will be focusing on myelofibrosis:\n– Dr. Brady Stein\, Northwestern Medicine\, Chicago and\n– Dr. Linda Resar\, Johns Hopkins Medicine\, Baltimore. \nVirtual attendees are welcome to ask questions during this event.\nNote that this event will be held early morning in Australia at 6.30am. \nYou can register HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-about-myelofibrosis/
LOCATION:Virtually via Zoom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20211115T190000
DTEND;TZID=Australia/Melbourne:20211115T203000
DTSTAMP:20260504T163907
CREATED:20211112T030056Z
LAST-MODIFIED:20211112T030236Z
UID:4129-1637002800-1637008200@www.mpnallianceaustralia.org.au
SUMMARY:November online support groups
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThey are facilitated by an experienced Blood Cancer Support Coordinator.\nThe support groups cover a range of subjects. Upcoming support groups for November are outlined below. \nPlease note that it is important to register early as numbers are limited to 15. \n  \n\n\n\nDate\nTime (AEDT)\nTopic\n\n\nMonday 15 November\n7:00pm – 8:30pm\nSelf Image/Self Identity\n\n\nThursday 25 November\n7:00pm – 8:30pm\nYoung people support group – self image/self identity\n\n\nTuesday 30 November\n1:00pm – 3:00pm\nCoping with bereavement\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/november-online-support-groups/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20211026T143000
DTEND;TZID=Australia/Melbourne:20211026T160000
DTSTAMP:20260504T163907
CREATED:20211001T132346Z
LAST-MODIFIED:20211001T140205Z
UID:4061-1635258600-1635264000@www.mpnallianceaustralia.org.au
SUMMARY:Men's October support group - Coping with covid
DESCRIPTION:The Leukaemia Foundation’s support group for men this month is ‘Coping with Covid’. \nThe group is online and free of charge.  It is facilitated by an experienced Blood Cancer Support Coordinator.\nThis men’s group offers you a place to chat to others with a blood cancer\, share your story\, exchange information and learn healthy coping strategies. \nIf you are interested\, while it’s free\, you need to register as there are limited places. \nFor further details and to register\, the link to the Leukaemia Foundation events page is HERE. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mens-support-group-coping-with-covid/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20211020T190000
DTEND;TZID=Australia/Melbourne:20211020T203000
DTSTAMP:20260504T163907
CREATED:20211001T131951Z
LAST-MODIFIED:20211001T131951Z
UID:4057-1634756400-1634761800@www.mpnallianceaustralia.org.au
SUMMARY:October online support group - Coping with COVID
DESCRIPTION:Each month the Leukaemia Foundation runs support groups online and free of charge for blood cancer patients. \nThese groups are facilitated by experienced Blood Cancer Support Coordinators. They offer a place for you to chat to others with a blood cancer\, share your story\, exchange information and learn healthy coping strategies. \nThe topic for 20 October is ‘Coping with Covid’ and if you are interested\, while it’s free\, you need to register as there are limited places. \nFor further details and to register\, the link to the Leukaemia Foundation support group page is HERE. \n  \n  \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/october-online-support-group-coping-with-covid/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210929T103000
DTEND;TZID=Australia/Melbourne:20210929T123000
DTSTAMP:20260504T163907
CREATED:20210921T013941Z
LAST-MODIFIED:20210921T015105Z
UID:4050-1632911400-1632918600@www.mpnallianceaustralia.org.au
SUMMARY:Upcoming webinar - exploring real life with blood cancer: a mind & body experience
DESCRIPTION:The Leukaemia Foundation is running a webinar about the long term and often chronic nature of blood cancer and its treatments\, along with holistic approaches to manage the impact of these on the life of someone with a blood cancer.\nBy changing the conversation\, the Leukaemia Foundation hopes to empower people living with blood cancer to take more control and subsequently help improve their overall quality of life.\nPlease note that this webinar is for all blood cancer patients\, including MPNs. \nSpeakers and topics include:  \n\nLiving your best life with blood cancer – Dr Cecily Forsyth\, Clinical Haematologist\nPsychological effects of blood cancer – Ms Jane Fletcher\, Health Psychologist\nFatigue & physical effects of blood cancer – Ms Julie Allen\, Physiotherapist and lymphoma survivor\n\nAttendance is free but you need to register HERE. \nThere will be opportunities to ask the speakers questions during the webinar or send your questions to osg@leukaemia.org.au any time before the webinar commences. \nFor more information\, please see the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/upcoming-webinar-exploring-real-life-with-blood-cancer-a-mind-body-experience/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210916T190000
DTEND;TZID=Australia/Melbourne:20210916T203000
DTSTAMP:20260504T163907
CREATED:20210805T111502Z
LAST-MODIFIED:20210908T123923Z
UID:3945-1631818800-1631824200@www.mpnallianceaustralia.org.au
SUMMARY:September online support groups
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThe support groups cover a range of subjects. Upcoming support groups for September are: \n\n‘Managing fatigue’\n\nIt is important to register early as numbers are limited to 15. \n\n\n\nDate\nTime (AEST)\nTopic\nAudience\n\n\nThursday 16 September\n7:00pm – 8:30pm\nManaging fatigue\nYoung adults\n\n\nFriday 24 September\n10.30am – 12.00pm\nManaging fatigue\nAll\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/september-online-support-groups/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210907T110000
DTEND;TZID=Australia/Melbourne:20210907T123000
DTSTAMP:20260504T163907
CREATED:20210827T034027Z
LAST-MODIFIED:20210827T034730Z
UID:3967-1631012400-1631017800@www.mpnallianceaustralia.org.au
SUMMARY:Webinar - COVID-19 vaccinations: fact and fiction
DESCRIPTION:The Leukaemia Foundation is running a webinar for patients with blood cancer about COVID-19 vaccinations. The aim is to provide you with trusted sources of information to help you make informed decisions.\nThis informative live webinar is free of charge and will feature:\n– Haematologist\, Associate Professor Nada Hamad\, and\n– Infectious diseases expert\, Associate Professor Paul Griffin. \n\nThey will be answering questions such as:\n–  Why should I have a vaccine for COVID-19?\n–  Is it safe and what are the risk factors associated with blood cancer?\n–  Is it effective for blood cancer patients? \nThere will be opportunities to ask the speakers questions during the webinar or send your questions to osg@leukaemia.org.au any time before the webinar commences. \nTo attend:  REGISTER HERE with the Leukaemia Foundation \n\nTo join the webinar on 7 September CLICK HERE \nTo participate you:\n– Will abide by the principles of privacy\, confidentiality & respect\n– Will need a PC\, laptop\, tablet or smartphone with an internet connection\n– Should check your junk or spam folders if you don’t receive a confirmation email of your registration. \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/webinar-covid-19-vaccinations-fact-and-fiction/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.mpnallianceaustralia.org.au/wp-content/uploads/2020/01/E8F2EC12-8239-4176-AD4F-AFB554BCE6A2-e1630034357991.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210819T225000
DTEND;TZID=Australia/Melbourne:20210821T064500
DTSTAMP:20260504T163907
CREATED:20210819T031531Z
LAST-MODIFIED:20210819T031531Z
UID:3959-1629413400-1629528300@www.mpnallianceaustralia.org.au
SUMMARY:MPN Texas workshop 19-21 August - online and free to attend
DESCRIPTION:The MPN Texas workshop\, featuring many of the world’s MPN experts\, starts late tonight Australian time and you are able to attend virtually. The workshop runs over two days (or two nights in our case). \nWhile there is of course the time zone lag\, if you register to attend there are a few weeks where you can catch up on the sessions online. \nThe goal of the workshop is “to bring together medical experts in the field of MPN to discuss the many new research and therapy options in development for MPN patients. We expect a deep dive into the role of current and new therapies in MPN. This truly international event will have many key investigators and thought leaders of the MPN community presenting and participating.” \nWe are so privileged to be able to view the latest evidence and research. You need to register but it is free. The link is below. \nhttps://mayscc.eventsair.com/2021texasmpn/ \n  \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mpn-texas-workshop-19-21-august-online-and-free-to-attend/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210812T140000
DTEND;TZID=Australia/Melbourne:20210812T153000
DTSTAMP:20260504T163907
CREATED:20210805T103620Z
LAST-MODIFIED:20210805T103724Z
UID:3941-1628776800-1628782200@www.mpnallianceaustralia.org.au
SUMMARY:August online support groups  - Managing tricky conversations
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThe support groups cover a range of subjects. Upcoming support groups for August are  ‘Managing tricky conversations’.\nIt is important to register early as numbers are limited to 15. \nUpcoming groups for August (‘Managing tricky conversations’) \n\n\n\nDate\nTime (AEST)\nAudience\n\n\nThurs 12 August\n2:00pm – 3:30pm\nCarers\n\n\nFri 20 August\n11:00am – 12:30pm\nEveryone\n\n\nMon 23 August\n3:00pm – 4:30pm\nMen\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/august-online-support-groups-managing-tricky-conversations/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210804T133000
DTEND;TZID=Australia/Melbourne:20210804T150000
DTSTAMP:20260504T163907
CREATED:20210715T120046Z
LAST-MODIFIED:20210720T124243Z
UID:3898-1628083800-1628089200@www.mpnallianceaustralia.org.au
SUMMARY:On line support groups - 'Managing tricky conversations'
DESCRIPTION:The Leukaemia Foundation runs regular online support groups\, free of charge and 100% confidential. \nThe support groups cover a range of subjects. Upcoming support groups for August are  ‘Managing tricky conversations’.\nIt is important to register early as numbers are limited to 15. \nUpcoming groups for August (‘Managing tricky conversations’) \n\n\n\nDate\nTime (AEST)\nAudience\n\n\nWed 4 August\n1:30pm – 3:00pm\nEveryone\n\n\nThurs 12 August\n2:00pm – 3:30pm\nCarers\n\n\nFri 20 August\n11:00am – 12:30pm\nEveryone\n\n\nMon 23 August\n3:00pm – 4:30pm\nMen\n\n\n\nTo register\, and for more information\, please see the attached link to the Leukaemia Foundation’s website. \n\nBlood Cancer Support Group: Managing tricky conversations \n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/on-line-support-group-managing-tricky-conversations/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210714T190000
DTEND;TZID=Australia/Melbourne:20210714T203000
DTSTAMP:20260504T163907
CREATED:20210708T045933Z
LAST-MODIFIED:20210708T050158Z
UID:3882-1626289200-1626294600@www.mpnallianceaustralia.org.au
SUMMARY:July online support groups run by the Leukaemia Foundation
DESCRIPTION:In these times of continuing lockdowns\, the Leukaemia Foundation continues to run its blood cancer support groups online. There is no charge for these events. \nThese groups are confidential\, facilitated by experienced staff and provide a supportive environment for sharing and exchanging information as well as learning healthy coping strategies. \nUpcoming groups and dates are: \n\n14 July\, 7-8.30pm:      Young adults’ (20-40) blood cancer support group ‘Living with Uncertainty’ \n21 July\, 10-11.30am:   Blood cancer support group ‘Living with Uncertainty’  \n29 July\, 12-1.30pm:    Parents’ blood cancer support group ‘Living with Uncertainty’\n\nFor further details and how to register\, please see the link below. \nhttps://www.leukaemia.org.au/get-involved/events/ \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/july-on-line-support-groups-run-by-the-leukaemia-foundation/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20210617T120000
DTEND;TZID=Australia/Melbourne:20210617T133000
DTSTAMP:20260504T163907
CREATED:20210602T104509Z
LAST-MODIFIED:20210602T104509Z
UID:3842-1623931200-1623936600@www.mpnallianceaustralia.org.au
SUMMARY:Online support groups run by the Leukaemia Foundation - June
DESCRIPTION:The Leukaemia Foundation is running its support groups again – currently still online – and a marvellous way to connect with others in a similar situation. \nBelow are some of the upcoming online support groups in June. \n\n2 June         Blood cancer support group: Self care.   (10-11.30am AEST)\n17 June       Blood cancer support group: Self care.   (12pm-1.30pm AEST)\n28 June      Men’s blood cancer support group: Vulnerability and resilience  (11am-12.30pm AEST)\n\nDetails and registration are at the Leukaemia Foundation website – see below. \nEvents \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-groups-run-by-the-leukaemia-foundation-june/
LOCATION:Virtual
END:VEVENT
END:VCALENDAR