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DTSTART;TZID=Australia/Melbourne:20230912T183000
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CREATED:20230825T111302Z
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UID:5916-1694543400-1694548800@www.mpnallianceaustralia.org.au
SUMMARY:Seminar - watch and wait
DESCRIPTION:The Leukaemia Foundation is running a webinar for those of us who are on ‘Watch and Wait’. \n“Some people with blood cancers/disorders do not need treatment straight away and some never need it. We understand these people experience a unique set of psychological and physical challenges. \nIf your doctor has recommended a Watch & Wait approach to the management of your blood cancer / disorder from the time of diagnosis & you have not received any treatment for your blood cancer this seminar is for you (it is also relevant to those who care for and support people on Watch & Wait). \nThis seminar is interactive – you will be able to share your experiences and tips as well as learn from other participants & guest speakers in a safe\, facilitated group.  Please note\, these groups are not designed to provide medical advice about your specific situation.   \nYou can submit questions prior to the seminar by emailing osg@leukaemia.org.au.” \nFOR MORE INFORMATION AND TO REGISTER  \nTimes:\n6:30pm – 8pm – NSW / VIC / ACT / TAS / QLD\n6pm – 7:30pm – SA / NT\n4:30pm – 6pm – WA \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/seminar-watch-and-wait/
LOCATION:Virtually via Zoom
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DTSTART;TZID=Australia/Melbourne:20230914T130000
DTEND;TZID=Australia/Melbourne:20230914T133000
DTSTAMP:20260505T095817
CREATED:20230911T100833Z
LAST-MODIFIED:20230912T054035Z
UID:5939-1694696400-1694698200@www.mpnallianceaustralia.org.au
SUMMARY:MPN Awareness Day Meditation with Asher Packman
DESCRIPTION:Asher Packman\, an MPN patient and President of Meditation Australia has kindly offered a free meditation to MPN patients\, their families and carers to mark MPN awareness day this Thursday\, 14 September at 1pm (AEST). \nThe MPN AA invites you to join Asher for a live online meditation as part of MPN Awareness Day. \nAsher (who was diagnosed with an MPN in 2010) will host a 30-minute session via Zoom.\nAnyone with an MPN – as well as their families\, friends and carers – are welcome to join at no cost. \nAs research is now clearly showing\, meditation is a valuable practice for our health\, with benefits such as stress reduction\, pain management\, improved sleep\, enhanced coping skills and resilience\, as well as overall improvements in vitality. Coming together with a community of people on a similar journey is also of great support\, and this is amplified during meditation. \nAsher promises a simple but profound practice\, accessible to complete beginners and more advanced practitioners alike. \nTo join\, simply click on the link below: \nhttps://us02web.zoom.us/j/83436093885 (there is no passcode required) \nWe hope to see you there. \nBackground \nMPN Awareness Day is an annual event that is held in September each year to raise awareness about myeloproliferative neoplasms. The aim of the day is to educate people about MPNs and the impact they can have on patients and their families. It also serves to encourage early detection\, diagnosis and treatment. MPN is a complex condition and it is also crucial to understand the different types\, their symptoms\, diagnostic methods and available treatment options. \nThe MPN AA thanks Asher Packman for offering this meditation. \n  \nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/mpn-awareness-day-meditation-with-asher-packman/
LOCATION:Virtually via Zoom
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DTSTART;TZID=Australia/Melbourne:20230920T120000
DTEND;TZID=Australia/Melbourne:20230920T133000
DTSTAMP:20260505T095817
CREATED:20230825T105923Z
LAST-MODIFIED:20230912T115520Z
UID:5909-1695211200-1695216600@www.mpnallianceaustralia.org.au
SUMMARY:Online support groups September
DESCRIPTION:Leukaemia Foundation online support groups\n\n\nThese free online groups are for blood cancer patients and are run by the Leukaemia Foundation. They are a wonderful source of support and sharing of knowledge. \nTopics vary each month and the Leukaemia Foundation usually runs groups such as: \n\na general blood cancer group (daytime and evening)\na mens’ group\n\nNumbers are limited so it’s important to register early. \nThe topic for September is Watch and wait \n“Watch and wait\, also known as ‘active monitoring’ is a term that can be misleading and anxiety provoking.  Active monitoring is often the recommended approach for those diagnosed with chronic or low-grade blood cancer. \nMany people experience uncertainty being in a ‘holding pattern’\, not knowing if or when they may need treatment. It can be hard to relate to others having chemotherapy or get the level of understanding or support from others you need. In this group\, we will discuss the physical and psychological effects of this approach as well as strategies to assist in managing.” \nDates are as follows: \n\n\n\nDate\nTime\nTopic\n\n\n20 September 2023\n12 -1.30pm\nWatch and wait\n\n\n\nGroup sizes are limited so registration is essential. \nREGISTER HERE for 20 September \nPlease check for start time in your state.\n \n12 – 1.30pm – NSW / VIC / ACT / TAS / QLD\n11.30am – 1pm – SA / NT\n10am – 11.30am – WA \nThings you need to know to participate: \n\nYou must be 18 years or older and have a blood cancer diagnosis or be the carer or support person of someone with that diagnosis.\nSupport groups close 15 minutes after start time. If you arrive after this\, you’ll be unable to join.\nWe ask you abide by the principles of privacy\, confidentiality and respect.\nIf you don’t receive a confirmation email of your registration\, please check your junk or spam folders.\nIf you have trouble joining the meeting\, this instructional video may help – Joining a Zoom meeting.\n\n\nShare to:
URL:https://www.mpnallianceaustralia.org.au/event/online-support-groups-september/
LOCATION:Virtually via Zoom
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