Ken Young, a founding member of the MPN AA and well known to the Australian MPN community, has co-authored an article about how fatigue can be a problem for MPN patients.
The research surveyed 90 patients who had already identified as suffering fatigue. Researchers then undertook qualitative research with those MPN patients and 23 were interviewed in considerable depth. The level of fatigue appeared to be more marked in patients with myelofibrosis.
The authors concluded that ‘health professionals could affect patients’ lives substantially by acknowledging and understanding fatigue in MPN, including contributing factors and potential opportunities for management.’ The article also proposed that ‘More systematic data describing the causes and management of MPN fatigue is needed.’
The full article is available HERE.