In what we believe could be a world first, myeloproliferative neoplasm (MPN) data is now included in the latest Australian Cancer Atlas. This Atlas provides national data on how cancer diagnosis and excess death rates vary by geographical area across Australia. This latest update incorporates details about the geographical patterns in MPN diagnoses and survival across Australia from 2007-2016.
The inclusion of MPNs is the initiative of Cancer Council Queensland, in collaboration with QUT. The MPNAA donated $10,000 towards this initiative and wishes to thank in particular Professor Peter Baade and his team, Dr Jess Cameron as well as WA’s Professor Lin Fritschi for their dedication to enabling MPNs to be part of this important resource.
The Australian Cancer Atlas is an interactive online resource helping researchers, members of the community, medical professionals and policy makers understand how the cancer burden varies by small geographical areas across Australia. It is fascinating to see how MPNs diagnoses vary across Australia, as well as MPN survival rates. The Atlas enables users to easily visualise those differences and offers critical insight into how the patterns of cancer and outcomes in Australia vary depending on where people live, which can be used to drive research priorities and policies going forward.
Professor Baade said that “The Australian Cancer Atlas has already proven itself to be an invaluable resource and benefit to many Australians, gaining industry, scientific and community acclaim. By updating the data contained in the Atlas ensures it remains relevant, and provides a great foundation for the next phase of development.”
MPN patient Jolanda Visser from the MPN Alliance Australia said that she was pleased to hear about MPNs being included in the Atlas. MPN Alliance Australia’s $10,000 donation was raised through a major fundraising dinner organised by Jolanda Visser held in 2018. “Having looked at the Atlas and seeing that we can retrieve MPN stats is making me feel very good,” said Ms Visser. “It is exciting that patients like me will be able to look at this information about MPN in their local area.” The MPNAA is keen to optimise the accuracy of MPN data, which is reliant on reporting of MPNs within each state and territory. The MPNAA will be liaising with stakeholders with the aim of maximising the integrity of this data to further inform research and health outcomes.
Co-lead on the Australian Cancer Atlas, the Distinguished Professor Kerrie Mengersen from the Queensland University of Technology said the latest editions would greatly benefit the Queensland community. “The Australian Cancer Atlas is a shining example of what can be achieved by combining cross-institutional expertise in statistics, e-research and cancer,” said Professor Mengersen. “This collaboration is inspiring since it not only benefits our community but also leads to new knowledge and new research.”
For more information on the Australian Cancer Atlas, please visit, atlas.cancer.org.au.
To access MPN data, MPNs are listed in the Atlas as Classic MPN.
Image from the fundraiser Charity dinner organised by MPNAA’s Jolanda Visser.