COVID-19 – if you are concerned about how your MPN might be affected by COVID-19, please refer to our COVID-19 specific page.
If you’ve just been diagnosed with an MPN, it can be overwhelming for you and your family.
We have put together some first steps below that might help you to navigate through the information available.
MPNs are generally regarded as chronic conditions. It’s worth noting that although the World Health Organization has classified MPNs as blood cancers because the blood cells are behaving in an abnormal/uncontrolled manner, in reality MPNs are mostly much less life threatening/changing for patients than other acute blood cancers. When diagnosed and managed well, most MPN patients have near to normal life expectancy.
Also relevant is that many MPN patients experience few if any symptoms. Others may experience some symptoms such as fatigue, itching after a shower, headaches or less often, bone pain. Many symptoms will however be resolved once blood counts are under control. It is important to advise your haematologist if you are experiencing any symptoms so that everything can be done to minimise symptoms and ensure your disease is kept under control.
- Booklet from the Leukaemia Foundation: Myeloproliferative Neoplasms (MPNs)– a guide for patients and families.
- MPN Treatment information – if your haematologist has chosen for you to start treatment, there is information on each of the treatments currently available in Australia.
- Support available in Australia and overseas – a large amount of online and other support and information is available.
- Face to face support groups run by the Leukaemia Foundation, Peter MacCallum Cancer Centre and MPN Alliance Australia – see Upcoming Events
- Patient education videos are available on this site from leading MPN Australian and international haematologists as well as a psychologist and GP.
- Living well -useful information to help you to feel better and live your best life.
- Wallet cards.