Here are links to resources you might find helpful if you are seeing a haematologist for the first time, or if you’ve been diagnosed with an MPN.
Patient information
- MPN guidelines and journal articles
- Young people and MPNs – a range of links and information
- Haematology appointments – Information to help you prepare
- Pathology tests explained – reputable Australian website, this links directly to the ‘full blood count’ information
- MPNs and Thrombosis; MPNs and other health issues – 2025 presentation by Dr Cecily Forsyth
- Wallet Cards and Living well: what can I do to help myself – printable MPN patient information brochure (can be printed in greyscale or colour)
- Living Well pages – explain how to maintain good health as an MPN patient.
MPN treatments
Our treatment information page has a range of information on each of the MPN treatments used in Australia. This includes:
- 2 videos on how to inject interferon
- Treatment information in PDF form for ease of printing (in English, Arabic, Chinese and Vietnamese)
- Articles on MPN treatment, including studies on comparing hydroxyurea with interferon treatments
- CLINICAL TRIALS: Information on clinical trials in Australia for MPNs
- STEM CELL TRANSPLANT: Stem cell transplants and donors – Information about how to register to become a donor
Education and support
- MPN conferences and patient education events from Australian and international MPN experts
- Australian and international support – good support options via facebook, email and more.
- MPN matters newsletters
Haematologists
These lists below include haematologists who are known to have experience with, or an interest in, myeloproliferative neoplasms (MPNs). It is compiled from publicly available information.
Inclusion on this list is not an endorsement by MPN AA, nor does it indicate any formal relationship with our organisation. We strongly encourage patients and carers to carry out their own due diligence when choosing a clinician, including seeking independent medical advice and confirming a doctor’s current scope of practice.
If you know of a haematologist with MPN expertise who is not listed, you are welcome to send us their details so we can review and consider adding them.
If you are a clinician and prefer not to be included, please contact us and we will remove your name promptly.
