The MPN AA is also pleased to recommend the following Australian organisations and support groups patients can reach out to.
VISIT: Australian/NZ Support Groups
Within Australia, the following organisations and support groups provide MPN support to the MPN Community:
- Leukaemia Foundation
- Closed Facebook group – MPN Australian & NZ Myeloproliferative Neoplasm Support Community
- MPD-oz Email Support Group (mpd-oz@mpd-oz.org)
- MPN AA Facebook Page
- Leukaemia and Blood Cancer New Zealand
VISIT: International Organisations
There are several international organisations, which have and continue to provide a wealth of MPN information, often with video presentations from MPN experts, to MPN patients and their families.
The MPN AA recommends the following sites:
- MPN Research Foundation
- MPN Advocacy & Education International
- MPN Voice
- MPN interferon forum (facebook)
- MPN Stichting NL – (Dutch language site)
- MPN Community Support
- Patient Power
- PV Reporter
VISIT: Other Australian Organisations
- Angel Flight Australia – A charity which co-ordinates non-emergency flights to assist country people to access specialist medical treatment.
- Australian Government – Cancer Australia
- Australian Government – Carer Gateway – National online and phone service providing practical information and resources to support carers.
- Australian Government – Department of Health – Palliative Care and planning for end-of-life care
- Australian Government – Services Australia – Payments for people living with an illness, injury or disability
- Cancer Council
- Chronic Illness Alliance – WorkWelfareWills is a plain English web guide to Victorian legal issues around health and life changes. Laws will be different in other states of Australia.
- Lifeline Australia – Crisis support & suicide prevention
- NDIS – National Disability Insurance Scheme
