There are several international organisations, which have and continue to provide MPN information to MPN sufferers and their families. The MPN AA recommends the following sites:
MPN Alliance Australia Newsletter
Fedratinib available for myelofibrosis patients?
Call for submissions
The Pharmaceutical Benefits Advisory Committee is open for comments from patients about the possible inclusion of Fedratinib (Inrebic ®) onto the PBS for eligible MF patients.
CLOSING DATE 26 MARCH 2025 - see HERE!