Stem cell transplants can cure an MPN

A certain percentage of MPN patients will have to make the choice to undergo a stem cell transplant. MPN patients can be cured by healthy blood stem cells from compatible donors, often family members. Stem cell transplants can also be from complete strangers, but the most important requirement is a genetic match of donor and patient.
If you are an MPN patient needing a transplant, please refer to the transplant information on the Leukaemia Foundation website.

If you are someone interested in helping save a life, please read on…..

The need for stem cell donors, 18-35 years old

Because of the need for a very close genetic match, there needs to be a large pool of stem cell donors to increase the chances of finding a compatible donor. There is a huge need to increase the number of registered stem cell donors in Australia, particularly of people from diverse ethnic backgrounds.  For example each year:

  • around 1200 Australian patients search for a donor
  • around 400 Australian patients receive potentially life saving cells
  • yet only 80 receive them from a fellow Australian stem cell donor.

18-35 year olds are the group needed to register

Yet only 0.2% of the eligible population (18-35 year old) in Australia is registered.
Currently, the vast majority of transplants for Australian patients come from overseas.

What does registering as a donor involve?

A cheek swab! Registering to be a stem cell donor is really that simple. It only involves a cheek swab.

Most people who register are never actually called upon to donate. But if you are a match, you have the power to save someone’s life.
And if you match…. the stem cells are taken from a blood donation. Imagine how it would feel if you could save a life, simply by donating blood.

A cheek swab is all that is required to register

Image: registering as a donor simply involves taking a cheek swab!

The website Stem Cell Donors Australia explains everything about becoming a donor and the donation process.
It also has patient stories as well as questions and answers.

So who would you be helping if you match?
Myelofibrosis patient Sharon’s story featured in the Leukaemia Foundation’s newsletter back in 2021. Sharon is from an ethnic minority group and is still seeking a compatible donor. Her youngest child is only ten.
Sharon has also been interviewed on ABC radio to raise awareness about the need for stem cell donors and her own quest for a donor.

Image: Sharon is one of the many Australians who needs to find a stem cell donor

There are many more MPN patients, many even younger than Sharon, in need of a transplant so please consider registering, and especially if you have a diverse ethnic background.

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