Invitation to participate in Living with MPN Fatigue study

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Australian MPN patients are invited to take part in a research project called Living with MPN Fatigue. This project aims to improve the understanding of the human experience of MPN fatigue (being tired).

You are eligible to take part if you have an MPN or CML diagnosis, live in Australia and have experienced fatigue affecting what you are able to do during the last 6 months.

You are invited to fill in a survey about your fatigue experience. This survey does not need to be completed all at once, you may answer some questions and then return at a later time or date to continue, within 2 weeks after you started it.

Further details are below but use this link to participate in the study and for more information. https://redcap.link/mpnfatigue2020

 

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Leukaemia Foundation’s February 2020 MPN News now available

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The Leukaemia Foundation puts out a regular MPN Newsletter for MPN patients and their families and carers.

It is a very informative read and can be accessed HERE.

And don’t forget the upcoming MPN support group in Brisbane on 14 March run by the Leukaemia Foundation.

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Videos available – Peter Mac MPN patient education seminar, Melbourne, 18 February 2020

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Peter Mac has kindly made available to patients the videos from the MPN Patient Education Seminar held on 18 February 2020.

This event included the following sessions:

  • MPNs, what are they?                       Dr Kate Burbury
  • Fatigue Management                        Elizabeth Pearson, Occupational Therapist
  • Keeping well with MPNs                   Nathalie Cook, Accredited Practising Dietitian
  • How to get a good night’s sleep      Dr Oliver Holmes, Psychologist

The link to the videos is here.

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MPN updates for 2020 – video from Drs Ruben Mesa and Robyn Scherber

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Drs Mesa and Scherber, haematologists from the Mays Cancer Centre in the US, discuss the latest findings from the American Society of Hematology meeting in December 2019, as well as the latest updates regarding new treatments for MPNs.  They also discuss quality of life issues for MPN patients.

WATCH VIDEO

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MPN Education Morning & webinar – PeterMac – 18 February 2020

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